BREATHE - Health Data Research Hub for Respiratory Health

What is BREATHE?

BREATHE is a UK-wide collaboration, enabling the use of health data in research to transform respiratory health. The Hub is a partnership between patients and publics, UK Universities, third sector, Government organisations and industry from across the UK and globally. It is led by The University of Edinburgh, Imperial College London, University of Leicester, Nottingham University Hospitals NHS Trust, Queen Mary University of London and Swansea University.

Visit the BREATHE website for more information

How we're aiming to help

Electronic Health Records (EHR) hold a wealth of information, but can be complicated to use due to variable quality and inconsistencies in reporting.

BREATHE is facilitating their use in research through:

  • The generation of standardised phenotypes for respiratory conditions in routinely collected healthcare data
  • Support for the use of phenotypes in research
  • Providing estimates of population sizes meeting each phenotype in each database
  • Expertly reviewing phenotypes at their definition and updating regularly

If you would like more information, or require support, please get in touch

Standardised Respiratory Phenotypes

BREATHE has brought together a set of phenotypes (found below) covering a number of key respiratory conditions. This is not an exhaustive list of codes or mandatory, but a guide to aid researchers in starting to make code lists appropriate for their study. We will continue to update existing lists and add more over time, so do keep checking back!