[
  {
    "phenotype_id": "PH2424",
    "phenotype_version_id": 5811,
    "name": "Frontotemporal dementia codes",
    "definition": "This codelist was taken from [OpenCodelists](https://www.opencodelists.org/), created by [OpenSAFELY](https://www.opensafely.org/). We recommend viewing this Phenotype on the OpenCodelist website to view the most recent version.\n\n\nTaken from the `DEMFTEMP_COD` refset published by NHSD. Contains public sector information licensed under the UK Open Government Licence v3\\.0 (https://www.nationalarchives.gov.uk/doc/open\\-government\\-licence/version/3/).\n\n\n© University of Oxford for the Bennett Institute for Applied Data Science 2025\\. This work may be copied freely for non\\-commercial research and study.\n\n",
    "implementation": null,
    "publications": null,
    "validation": null,
    "citation_requirements": null,
    "created": "2026-01-26T22:14:11.563266Z",
    "author": "NHSD Primary Care Domain Refsets",
    "collections": [
      {
        "name": "OpenCodelist",
        "value": 31
      },
      {
        "name": "Phenotype Library",
        "value": 18
      }
    ],
    "tags": null,
    "organisation": {
      "id": 1,
      "slug": "opensafely",
      "name": "OpenSAFELY"
    },
    "world_access": 1,
    "updated": "2026-01-26T22:14:13.877991Z",
    "references": [],
    "signed_off": [],
    "methodology": "",
    "coding_system": [
      {
        "name": "SNOMED  CT codes",
        "value": 9
      }
    ],
    "open_codelist_id": "nhsd-primary-care-domain-refsets/demftemp_cod",
    "source_reference": "https://www.opencodelists.org/codelist/nhsd-primary-care-domain-refsets/demftemp_cod/20250912",
    "concept_information": [
      {
        "concept_id": 5988,
        "concept_version_id": 13473,
        "concept_name": "nhsd-primary-care-domain-refsets/demftemp_cod/20250912",
        "coding_system": {
          "id": 9,
          "name": "SNOMED  CT codes",
          "description": "SNOMED CT codes"
        },
        "phenotype_id": "PH2424",
        "phenotype_version_id": 5811,
        "phenotype_name": "Frontotemporal dementia codes",
        "code_attribute_header": [],
        "codes": [
          {
            "code": "1259124000",
            "description": "Amyotrophic lateral sclerosis with frontotemporal dementia",
            "attributes": null
          },
          {
            "code": "1260328002",
            "description": "Familial multiple system deposition of tau protein",
            "attributes": null
          },
          {
            "code": "1260352009",
            "description": "Frontotemporal dementia due to TARDBP mutation",
            "attributes": null
          },
          {
            "code": "1260353004",
            "description": "Frontotemporal dementia due to VCP mutation",
            "attributes": null
          },
          {
            "code": "1260354005",
            "description": "Frontotemporal dementia due to C9orf72 mutation",
            "attributes": null
          },
          {
            "code": "1260355006",
            "description": "Frontotemporal dementia due to FUS mutation",
            "attributes": null
          },
          {
            "code": "13092008",
            "description": "Pick's disease",
            "attributes": null
          },
          {
            "code": "192174003",
            "description": "[X]Dementia in Pick's disease",
            "attributes": null
          },
          {
            "code": "21921000119103",
            "description": "Dementia co-occurrent and due to Pick's disease",
            "attributes": null
          },
          {
            "code": "230270009",
            "description": "Frontotemporal dementia",
            "attributes": null
          },
          {
            "code": "230271008",
            "description": "Pick's disease with Pick bodies",
            "attributes": null
          },
          {
            "code": "230272001",
            "description": "Pick's disease with Pick cells and no Pick bodies",
            "attributes": null
          },
          {
            "code": "230288001",
            "description": "Semantic dementia",
            "attributes": null
          },
          {
            "code": "278857002",
            "description": "Dementia of frontal lobe type",
            "attributes": null
          },
          {
            "code": "455381000000102",
            "description": "[X]Dementia in Pick's disease",
            "attributes": null
          },
          {
            "code": "702393003",
            "description": "Frontotemporal dementia with gene located on 3p11",
            "attributes": null
          },
          {
            "code": "702426001",
            "description": "GRN-related frontotemporal dementia",
            "attributes": null
          },
          {
            "code": "702429008",
            "description": "Frontotemporal dementia with parkinsonism-17",
            "attributes": null
          },
          {
            "code": "703544004",
            "description": "Inclusion body myopathy with early-onset Paget disease and frontotemporal dementia",
            "attributes": null
          },
          {
            "code": "716281000",
            "description": "Primary progressive non fluent aphasia",
            "attributes": null
          },
          {
            "code": "716667005",
            "description": "Right temporal atrophy variant frontotemporal dementia",
            "attributes": null
          },
          {
            "code": "716994006",
            "description": "Behavioral variant of frontotemporal dementia",
            "attributes": null
          },
          {
            "code": "82351000119105",
            "description": "Altered behavior due to Pick's disease",
            "attributes": null
          }
        ]
      }
    ],
    "coding_system_release": "",
    "open_codelist_version_id": "5a880cdd",
    "open_codelist_version_tag": "20250912",
    "status": 1,
    "doi": "https://doi.org/10.48533/dn8y-8907",
    "is_deleted": false,
    "publish_status": 2,
    "owner": "ieuan.scanlon",
    "template": {
      "id": 3,
      "name": "OpenCodelists Phenotype",
      "description": "OpenSafely's OpenCodelist Phenotype, visit https://www.opencodelists.org/ to learn more",
      "version_id": 1
    },
    "versions": [
      {
        "version_id": 5811,
        "version_name": "Frontotemporal dementia codes",
        "version_date": "2026-01-26T22:14:13.891137Z",
        "is_published": true,
        "is_latest": true
      },
      {
        "version_id": 5810,
        "version_name": "Frontotemporal dementia codes",
        "version_date": "2026-01-26T22:14:12.726568Z",
        "is_published": true,
        "is_latest": false
      },
      {
        "version_id": 5809,
        "version_name": "Frontotemporal dementia codes",
        "version_date": "2026-01-26T22:14:11.574191Z",
        "is_published": true,
        "is_latest": false
      }
    ]
  }
]