[
  {
    "phenotype_id": "PH2436",
    "phenotype_version_id": 5849,
    "name": "Codes for dementia",
    "definition": "This codelist was taken from [OpenCodelists](https://www.opencodelists.org/), created by [OpenSAFELY](https://www.opensafely.org/). We recommend viewing this Phenotype on the OpenCodelist website to view the most recent version.\n\n\nTaken from the `DEM_COD` refset published by NHSD. Contains public sector information licensed under the UK Open Government Licence v3\\.0 (https://www.nationalarchives.gov.uk/doc/open\\-government\\-licence/version/3/).\n\n\n© University of Oxford for the Bennett Institute for Applied Data Science 2025\\. This work may be copied freely for non\\-commercial research and study.\n\n",
    "implementation": null,
    "publications": null,
    "validation": null,
    "citation_requirements": null,
    "created": "2026-01-26T22:14:55.697705Z",
    "author": "NHSD Primary Care Domain Refsets",
    "collections": [
      {
        "name": "OpenCodelist",
        "value": 31
      },
      {
        "name": "Phenotype Library",
        "value": 18
      }
    ],
    "tags": null,
    "organisation": {
      "id": 1,
      "slug": "opensafely",
      "name": "OpenSAFELY"
    },
    "world_access": 1,
    "updated": "2026-01-26T22:15:04.231657Z",
    "references": [
      {
        "url": "https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/quality-and-outcomes-framework-qof/quality-and-outcome-framework-qof-business-rules/primary-care-domain-reference-set-portal",
        "title": "Primary Care Domain Reference Set Portal"
      }
    ],
    "signed_off": [],
    "methodology": "",
    "coding_system": [
      {
        "name": "SNOMED  CT codes",
        "value": 9
      }
    ],
    "open_codelist_id": "nhsd-primary-care-domain-refsets/dem_cod",
    "source_reference": "https://www.opencodelists.org/codelist/nhsd-primary-care-domain-refsets/dem_cod/20250912",
    "concept_information": [
      {
        "concept_id": 6026,
        "concept_version_id": 13511,
        "concept_name": "nhsd-primary-care-domain-refsets/dem_cod/20250912",
        "coding_system": {
          "id": 9,
          "name": "SNOMED  CT codes",
          "description": "SNOMED CT codes"
        },
        "phenotype_id": "PH2436",
        "phenotype_version_id": 5849,
        "phenotype_name": "Codes for dementia",
        "code_attribute_header": [],
        "codes": [
          {
            "code": "101421000119107",
            "description": "Dementia due to Parkinson's disease",
            "attributes": null
          },
          {
            "code": "10349009",
            "description": "Multi-infarct dementia with delirium",
            "attributes": null
          },
          {
            "code": "10532003",
            "description": "Primary degenerative dementia of the Alzheimer type, presenile onset, with depression",
            "attributes": null
          },
          {
            "code": "105421000119105",
            "description": "Early onset Alzheimer's disease with behavioral disturbance",
            "attributes": null
          },
          {
            "code": "106021000119105",
            "description": "Multi-infarct dementia due to atherosclerosis",
            "attributes": null
          },
          {
            "code": "1089501000000102",
            "description": "Presenile dementia with psychosis",
            "attributes": null
          },
          {
            "code": "1089521000000106",
            "description": "Predominantly cortical dementia",
            "attributes": null
          },
          {
            "code": "1089531000000108",
            "description": "Predominantly cortical vascular dementia",
            "attributes": null
          },
          {
            "code": "1089581000000107",
            "description": "Predominantly cortical dementia",
            "attributes": null
          },
          {
            "code": "109478007",
            "description": "Amelocerebrohypohidrotic syndrome",
            "attributes": null
          },
          {
            "code": "111480006",
            "description": "Psychoactive substance-induced organic dementia",
            "attributes": null
          },
          {
            "code": "1148924004",
            "description": "Dementia due to deficiency of folic acid",
            "attributes": null
          },
          {
            "code": "1156789004",
            "description": "Autosomal dominant Alzheimer disease due to mutation of amyloid precursor protein",
            "attributes": null
          },
          {
            "code": "1156798001",
            "description": "Autosomal dominant Alzheimer disease due to mutation of presenilin 2",
            "attributes": null
          },
          {
            "code": "1156800008",
            "description": "Autosomal dominant Alzheimer disease due to mutation of presenilin 1",
            "attributes": null
          },
          {
            "code": "1163119007",
            "description": "Creutzfeldt Jakob disease following graft of dura",
            "attributes": null
          },
          {
            "code": "1186877003",
            "description": "Dementia due to vitamin E deficiency",
            "attributes": null
          },
          {
            "code": "1186879000",
            "description": "Dementia due to thiamine deficiency",
            "attributes": null
          },
          {
            "code": "1186880002",
            "description": "Dementia due to cobalamin deficiency",
            "attributes": null
          },
          {
            "code": "1186881003",
            "description": "Dementia due to niacin deficiency",
            "attributes": null
          },
          {
            "code": "1186883000",
            "description": "Dementia due to nutritional deficiency disorder",
            "attributes": null
          },
          {
            "code": "1186887004",
            "description": "Dementia caused by manganese and/or manganese compound",
            "attributes": null
          },
          {
            "code": "1187004001",
            "description": "Chronic traumatic encephalopathy",
            "attributes": null
          },
          {
            "code": "12348006",
            "description": "Presenile dementia",
            "attributes": null
          },
          {
            "code": "1259121008",
            "description": "Amyotrophic lateral sclerosis, parkinsonism, dementia complex of West New Guinea",
            "attributes": null
          },
          {
            "code": "1259123006",
            "description": "Amyotrophic lateral sclerosis, parkinsonism, dementia complex of Kii Peninsula",
            "attributes": null
          },
          {
            "code": "1259124000",
            "description": "Amyotrophic lateral sclerosis with frontotemporal dementia",
            "attributes": null
          },
          {
            "code": "1259128002",
            "description": "Alzheimer's disease with psychosis",
            "attributes": null
          },
          {
            "code": "1259465009",
            "description": "Dementia due to hepatic failure",
            "attributes": null
          },
          {
            "code": "1259467001",
            "description": "Dementia due to hypercalcemia",
            "attributes": null
          },
          {
            "code": "1259469003",
            "description": "Dementia due to Gerstmann Straussler Scheinker syndrome",
            "attributes": null
          },
          {
            "code": "1259471003",
            "description": "Dementia due to Hashimoto encephalopathy",
            "attributes": null
          },
          {
            "code": "1259473000",
            "description": "Dementia due to fragile X syndrome",
            "attributes": null
          },
          {
            "code": "1259476008",
            "description": "Dementia due to genetic disease",
            "attributes": null
          },
          {
            "code": "1259478009",
            "description": "Dementia due to familial Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "1259480003",
            "description": "Dementia due to fatal familial insomnia",
            "attributes": null
          },
          {
            "code": "1259485008",
            "description": "Dementia due to cerebral vasculitis",
            "attributes": null
          },
          {
            "code": "1259488005",
            "description": "Dementia due to cerebral amyloid angiopathy",
            "attributes": null
          },
          {
            "code": "1259492003",
            "description": "Dementia due to metastatic malignant neoplasm to brain",
            "attributes": null
          },
          {
            "code": "1259494002",
            "description": "Dementia due to leukodystrophy",
            "attributes": null
          },
          {
            "code": "1259496000",
            "description": "Dementia due to Lyme disease",
            "attributes": null
          },
          {
            "code": "1259499007",
            "description": "Dementia due to hemorrhagic cerebral infarction due to hypertension",
            "attributes": null
          },
          {
            "code": "1259501004",
            "description": "Dementia due to kuru",
            "attributes": null
          },
          {
            "code": "1259503001",
            "description": "Dementia due to iatrogenic Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "1259511006",
            "description": "Dementia due to Wilson disease",
            "attributes": null
          },
          {
            "code": "1259513009",
            "description": "Dementia due to Whipple disease",
            "attributes": null
          },
          {
            "code": "1259517005",
            "description": "Dementia due to systemic lupus erythematosus",
            "attributes": null
          },
          {
            "code": "1259519008",
            "description": "Dementia due to subacute sclerosing panencephalitis",
            "attributes": null
          },
          {
            "code": "1259522005",
            "description": "Dementia due to variant Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "1259524006",
            "description": "Dementia due to trypanosomiasis",
            "attributes": null
          },
          {
            "code": "1259529001",
            "description": "Dementia due to sporadic Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "1259531005",
            "description": "Dementia due to hypertensive encephalopathy",
            "attributes": null
          },
          {
            "code": "1259579003",
            "description": "Dementia due to Behcet syndrome",
            "attributes": null
          },
          {
            "code": "1259581001",
            "description": "Dementia due to celiac disease",
            "attributes": null
          },
          {
            "code": "1259584009",
            "description": "Dementia due to and following dialysis",
            "attributes": null
          },
          {
            "code": "1259586006",
            "description": "Dementia due to autoimmune encephalitis",
            "attributes": null
          },
          {
            "code": "1259591007",
            "description": "Dementia due to acquired hypothyroidism",
            "attributes": null
          },
          {
            "code": "1259656006",
            "description": "Dementia due to renal failure",
            "attributes": null
          },
          {
            "code": "1259661008",
            "description": "Dementia due to inflammatory disorder of musculoskeletal system",
            "attributes": null
          },
          {
            "code": "1259663006",
            "description": "Dementia due to polyarteritis nodosa",
            "attributes": null
          },
          {
            "code": "1259665004",
            "description": "Dementia due to progressive subcortical gliosis",
            "attributes": null
          },
          {
            "code": "1259667007",
            "description": "Dementia due to paraneoplastic encephalitis",
            "attributes": null
          },
          {
            "code": "1259673008",
            "description": "Dementia due to neurofilament inclusion body disease",
            "attributes": null
          },
          {
            "code": "1259675001",
            "description": "Dementia due to obstructive hydrocephalus",
            "attributes": null
          },
          {
            "code": "1259677009",
            "description": "Dementia due to multiple system atrophy",
            "attributes": null
          },
          {
            "code": "1259679007",
            "description": "Dementia due to atypical pantothenate kinase associated neurodegeneration",
            "attributes": null
          },
          {
            "code": "1259990004",
            "description": "Dementia due to classical pantothenate kinase associated neurodegeneration",
            "attributes": null
          },
          {
            "code": "1260328002",
            "description": "Familial multiple system deposition of tau protein",
            "attributes": null
          },
          {
            "code": "1260352009",
            "description": "Frontotemporal dementia due to TARDBP mutation",
            "attributes": null
          },
          {
            "code": "1260353004",
            "description": "Frontotemporal dementia due to VCP mutation",
            "attributes": null
          },
          {
            "code": "1260354005",
            "description": "Frontotemporal dementia due to C9orf72 mutation",
            "attributes": null
          },
          {
            "code": "1260355006",
            "description": "Frontotemporal dementia due to FUS mutation",
            "attributes": null
          },
          {
            "code": "1263555006",
            "description": "Logopenic non-amnestic Alzheimer disease",
            "attributes": null
          },
          {
            "code": "1263585001",
            "description": "Frontal variant non-amnestic Alzheimer disease",
            "attributes": null
          },
          {
            "code": "12741002",
            "description": "AIDS with dementia",
            "attributes": null
          },
          {
            "code": "130121000119104",
            "description": "Dementia due to Rett syndrome",
            "attributes": null
          },
          {
            "code": "13092008",
            "description": "Pick's disease",
            "attributes": null
          },
          {
            "code": "134422007",
            "description": "Alzheimer's disease with early onset",
            "attributes": null
          },
          {
            "code": "134423002",
            "description": "Alzheimer's disease with late onset",
            "attributes": null
          },
          {
            "code": "135811000119107",
            "description": "Lewy body dementia with behavioral disturbance",
            "attributes": null
          },
          {
            "code": "138736007",
            "description": "H/O: dementia",
            "attributes": null
          },
          {
            "code": "14070001",
            "description": "Multi-infarct dementia with depression",
            "attributes": null
          },
          {
            "code": "141991000119109",
            "description": "Alzheimer's disease with delusions",
            "attributes": null
          },
          {
            "code": "142001000119106",
            "description": "Alzheimer's disease with depressed mood",
            "attributes": null
          },
          {
            "code": "142011000119109",
            "description": "Alzheimer's disease with delirium",
            "attributes": null
          },
          {
            "code": "142811000119104",
            "description": "Dementia due to Alzheimer's disease",
            "attributes": null
          },
          {
            "code": "154845000",
            "description": "Dementia (& [presenile] or [senile])",
            "attributes": null
          },
          {
            "code": "154846004",
            "description": "Uncomplicated senile dementia",
            "attributes": null
          },
          {
            "code": "154847008",
            "description": "Presenile dementia",
            "attributes": null
          },
          {
            "code": "154848003",
            "description": "Senile dementia with depressive or paranoid features",
            "attributes": null
          },
          {
            "code": "154849006",
            "description": "Senile dementia with delirium",
            "attributes": null
          },
          {
            "code": "154850006",
            "description": "Vascular dementia",
            "attributes": null
          },
          {
            "code": "154851005",
            "description": "Other senile/presenile dementia",
            "attributes": null
          },
          {
            "code": "155061007",
            "description": "Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "15662003",
            "description": "Senile dementia",
            "attributes": null
          },
          {
            "code": "1581000119101",
            "description": "Dementia of the Alzheimer type with behavioral disturbance",
            "attributes": null
          },
          {
            "code": "1591000119103",
            "description": "Dementia with behavioral disturbance",
            "attributes": null
          },
          {
            "code": "161465002",
            "description": "History of dementia",
            "attributes": null
          },
          {
            "code": "16219201000119101",
            "description": "Late onset Alzheimer's dementia with behavioral disturbance",
            "attributes": null
          },
          {
            "code": "16276361000119109",
            "description": "Vascular dementia without behavioral disturbance",
            "attributes": null
          },
          {
            "code": "191449005",
            "description": "Uncomplicated senile dementia",
            "attributes": null
          },
          {
            "code": "191450005",
            "description": "Presenile dementia",
            "attributes": null
          },
          {
            "code": "191451009",
            "description": "Uncomplicated presenile dementia",
            "attributes": null
          },
          {
            "code": "191452002",
            "description": "Presenile dementia with delirium",
            "attributes": null
          },
          {
            "code": "191454001",
            "description": "Presenile dementia with paranoia",
            "attributes": null
          },
          {
            "code": "191455000",
            "description": "Presenile dementia with depression",
            "attributes": null
          },
          {
            "code": "191456004",
            "description": "Presenile dementia NOS",
            "attributes": null
          },
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            "code": "191457008",
            "description": "Senile dementia with depressive or paranoid features",
            "attributes": null
          },
          {
            "code": "191458003",
            "description": "Senile dementia with paranoia",
            "attributes": null
          },
          {
            "code": "191459006",
            "description": "Senile dementia with depression",
            "attributes": null
          },
          {
            "code": "191460001",
            "description": "Senile dementia with depressive or paranoid features NOS",
            "attributes": null
          },
          {
            "code": "191461002",
            "description": "Senile dementia with delirium",
            "attributes": null
          },
          {
            "code": "191462009",
            "description": "Arteriosclerotic dementia (including [multi infarct dementia])",
            "attributes": null
          },
          {
            "code": "191463004",
            "description": "Uncomplicated arteriosclerotic dementia",
            "attributes": null
          },
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            "code": "191464005",
            "description": "Arteriosclerotic dementia with delirium",
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            "attributes": null
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            "description": "Alcoholic dementia: [other] or [NOS]",
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            "code": "191493005",
            "description": "Dementia caused by drug",
            "attributes": null
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          {
            "code": "191519005",
            "description": "Dementia associated with another disease",
            "attributes": null
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          {
            "code": "192160005",
            "description": "[X]Dementia in Alzheimer's disease",
            "attributes": null
          },
          {
            "code": "192161009",
            "description": "Dementia in Alzheimer's disease with early onset",
            "attributes": null
          },
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            "description": "Dementia in Alzheimer's disease with late onset",
            "attributes": null
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            "description": "[X]Dementia in Alzheimer's dis, atypical or mixed type",
            "attributes": null
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            "description": "[X]Dementia in Alzheimer's disease, unspecified",
            "attributes": null
          },
          {
            "code": "192165000",
            "description": "Vascular dementia",
            "attributes": null
          },
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            "description": "Vascular dementia of acute onset",
            "attributes": null
          },
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            "description": "[X]Dementia: [multi-infarct] or [predominantly cortical]",
            "attributes": null
          },
          {
            "code": "192168003",
            "description": "Subcortical vascular dementia",
            "attributes": null
          },
          {
            "code": "192169006",
            "description": "Mixed cortical and subcortical vascular dementia",
            "attributes": null
          },
          {
            "code": "192170007",
            "description": "[X]Other vascular dementia",
            "attributes": null
          },
          {
            "code": "192171006",
            "description": "[X]Vascular dementia, unspecified",
            "attributes": null
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          {
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            "description": "[X]Dementia in other diseases classified elsewhere",
            "attributes": null
          },
          {
            "code": "192174003",
            "description": "[X]Dementia in Pick's disease",
            "attributes": null
          },
          {
            "code": "192175002",
            "description": "[X]Dementia in Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "192176001",
            "description": "[X]Dementia in Huntington's disease",
            "attributes": null
          },
          {
            "code": "192177005",
            "description": "[X]Dementia in Parkinson's disease",
            "attributes": null
          },
          {
            "code": "192178000",
            "description": "Acquired immune deficiency syndrome dementia complex",
            "attributes": null
          },
          {
            "code": "192179008",
            "description": "[X]Dementia in other specified diseases classif elsewhere",
            "attributes": null
          },
          {
            "code": "192180006",
            "description": "[X] Dementia: [unspecif] or [presenile NOS (including presenile psychosis NOS)] or [primary degenerative NOS] or [senile NOS (including senile psychosis NOS)] or [senile depressed or paranoid type]",
            "attributes": null
          },
          {
            "code": "192184002",
            "description": "[X]Delirium superimposed on dementia",
            "attributes": null
          },
          {
            "code": "192802002",
            "description": "Dementia in Alzheimer's disease with early onset",
            "attributes": null
          },
          {
            "code": "192803007",
            "description": "Dementia in Alzheimer's disease with late onset",
            "attributes": null
          },
          {
            "code": "192808003",
            "description": "Lewy body disease",
            "attributes": null
          },
          {
            "code": "192818008",
            "description": "Cerebral degeneration due to Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "194481000",
            "description": "[X]Other Alzheimer's disease",
            "attributes": null
          },
          {
            "code": "198681000000106",
            "description": "[X]Lewy body dementia",
            "attributes": null
          },
          {
            "code": "20484008",
            "description": "Prion disease",
            "attributes": null
          },
          {
            "code": "214031000000108",
            "description": "[X]Lewy body dementia",
            "attributes": null
          },
          {
            "code": "21921000119103",
            "description": "Dementia co-occurrent and due to Pick's disease",
            "attributes": null
          },
          {
            "code": "22381000119105",
            "description": "Primary degenerative dementia",
            "attributes": null
          },
          {
            "code": "229672009",
            "description": "Language disorder of dementia",
            "attributes": null
          },
          {
            "code": "230258005",
            "description": "Amyotrophic lateral sclerosis with dementia",
            "attributes": null
          },
          {
            "code": "230265002",
            "description": "Familial Alzheimer's disease of early onset",
            "attributes": null
          },
          {
            "code": "230266001",
            "description": "Non-familial Alzheimer's disease of early onset",
            "attributes": null
          },
          {
            "code": "230267005",
            "description": "Familial Alzheimer's disease of late onset",
            "attributes": null
          },
          {
            "code": "230268000",
            "description": "Non-familial Alzheimer's disease of late onset",
            "attributes": null
          },
          {
            "code": "230269008",
            "description": "Focal Alzheimer's disease",
            "attributes": null
          },
          {
            "code": "230270009",
            "description": "Frontotemporal dementia",
            "attributes": null
          },
          {
            "code": "230271008",
            "description": "Pick's disease with Pick bodies",
            "attributes": null
          },
          {
            "code": "230272001",
            "description": "Pick's disease with Pick cells and no Pick bodies",
            "attributes": null
          },
          {
            "code": "230275004",
            "description": "Lewy body disease",
            "attributes": null
          },
          {
            "code": "230276003",
            "description": "Lewy body disease",
            "attributes": null
          },
          {
            "code": "230277007",
            "description": "Lewy body disease",
            "attributes": null
          },
          {
            "code": "230280008",
            "description": "Alzheimer's disease with progressive aphasia",
            "attributes": null
          },
          {
            "code": "230281007",
            "description": "Argyrophilic grain disease",
            "attributes": null
          },
          {
            "code": "230282000",
            "description": "Post-traumatic dementia",
            "attributes": null
          },
          {
            "code": "230283005",
            "description": "Punch drunk syndrome",
            "attributes": null
          },
          {
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