[
  {
    "phenotype_id": "PH2527",
    "phenotype_version_id": 6162,
    "name": "Epilepsy diagnosis codes",
    "definition": "This codelist was taken from [OpenCodelists](https://www.opencodelists.org/), created by [OpenSAFELY](https://www.opensafely.org/). We recommend viewing this Phenotype on the OpenCodelist website to view the most recent version.\n\n\nTaken from the `EPIL_COD` refset published by NHSD. Contains public sector information licensed under the UK Open Government Licence v3\\.0 (https://www.nationalarchives.gov.uk/doc/open\\-government\\-licence/version/3/).\n\n\n© University of Oxford for the Bennett Institute for Applied Data Science 2025\\. This work may be copied freely for non\\-commercial research and study.\n\n",
    "implementation": null,
    "publications": null,
    "validation": null,
    "citation_requirements": null,
    "created": "2026-01-26T22:21:20.367683Z",
    "author": "NHSD Primary Care Domain Refsets",
    "collections": [
      {
        "name": "OpenCodelist",
        "value": 31
      },
      {
        "name": "Phenotype Library",
        "value": 18
      }
    ],
    "tags": null,
    "organisation": {
      "id": 1,
      "slug": "opensafely",
      "name": "OpenSAFELY"
    },
    "world_access": 1,
    "updated": "2026-01-26T22:21:28.569544Z",
    "references": [
      {
        "url": "https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/quality-and-outcomes-framework-qof/quality-and-outcome-framework-qof-business-rules/primary-care-domain-reference-set-portal",
        "title": "Primary Care Domain Reference Set Portal"
      }
    ],
    "signed_off": [],
    "methodology": "",
    "coding_system": [
      {
        "name": "SNOMED  CT codes",
        "value": 9
      }
    ],
    "open_codelist_id": "nhsd-primary-care-domain-refsets/epil_cod",
    "source_reference": "https://www.opencodelists.org/codelist/nhsd-primary-care-domain-refsets/epil_cod/20250912",
    "concept_information": [
      {
        "concept_id": 6339,
        "concept_version_id": 13824,
        "concept_name": "nhsd-primary-care-domain-refsets/epil_cod/20250912",
        "coding_system": {
          "id": 9,
          "name": "SNOMED  CT codes",
          "description": "SNOMED CT codes"
        },
        "phenotype_id": "PH2527",
        "phenotype_version_id": 6162,
        "phenotype_name": "Epilepsy diagnosis codes",
        "code_attribute_header": [],
        "codes": [
          {
            "code": "104101000000101",
            "description": "Complex partial epileptic seizure",
            "attributes": null
          },
          {
            "code": "104111000000104",
            "description": "Early infantile epileptic encephalopathy with suppression bursts",
            "attributes": null
          },
          {
            "code": "109478007",
            "description": "Amelocerebrohypohidrotic syndrome",
            "attributes": null
          },
          {
            "code": "111498005",
            "description": "Extratemporal epilepsy",
            "attributes": null
          },
          {
            "code": "1156803005",
            "description": "Neonatal glycine encephalopathy",
            "attributes": null
          },
          {
            "code": "1156826003",
            "description": "Infantile glycine encephalopathy",
            "attributes": null
          },
          {
            "code": "1163527006",
            "description": "Epilepsy due to parasitic disease",
            "attributes": null
          },
          {
            "code": "1163529009",
            "description": "Epilepsy due to bacterial endocarditis",
            "attributes": null
          },
          {
            "code": "116401000119105",
            "description": "Recurrent complex partial epilepsy",
            "attributes": null
          },
          {
            "code": "1167371007",
            "description": "Polyhydramnios, megalencephaly, symptomatic epilepsy syndrome",
            "attributes": null
          },
          {
            "code": "1172627007",
            "description": "Early-onset epilepsy, intellectual disability, brain anomalies syndrome",
            "attributes": null
          },
          {
            "code": "1172630000",
            "description": "Global developmental delay, neuro-ophthalmological abnormalities, seizures, intellectual disability syndrome",
            "attributes": null
          },
          {
            "code": "117891000119100",
            "description": "Focal onset aware epileptic seizure",
            "attributes": null
          },
          {
            "code": "1179282009",
            "description": "Severe neurodevelopmental disorder with feeding difficulties, stereotypic hand movement, bilateral cataract",
            "attributes": null
          },
          {
            "code": "1179360000",
            "description": "Fetal epilepsy due to perinatal stroke",
            "attributes": null
          },
          {
            "code": "1179547007",
            "description": "Neonatal epilepsy due to perinatal stroke",
            "attributes": null
          },
          {
            "code": "1187042007",
            "description": "Early-onset seizures, distal limb anomalies, facial dysmorphism, global developmental delay syndrome",
            "attributes": null
          },
          {
            "code": "1187250005",
            "description": "Seizures, scoliosis, macrocephaly syndrome",
            "attributes": null
          },
          {
            "code": "1187278006",
            "description": "Spastic paraplegia, severe developmental delay, epilepsy syndrome",
            "attributes": null
          },
          {
            "code": "1187304005",
            "description": "Macrocephaly, intellectual disability, neurodevelopmental disorder, small thorax syndrome",
            "attributes": null
          },
          {
            "code": "119001000119108",
            "description": "Intractable simple partial epilepsy",
            "attributes": null
          },
          {
            "code": "1197587003",
            "description": "Lethal neonatal spasticity, epileptic encephalopathy syndrome",
            "attributes": null
          },
          {
            "code": "1208486005",
            "description": "Multiple mitochondrial dysfunctions syndrome type 2",
            "attributes": null
          },
          {
            "code": "1208939001",
            "description": "Progressive myoclonic epilepsy type 7",
            "attributes": null
          },
          {
            "code": "1208960007",
            "description": "Motor epileptic seizure",
            "attributes": null
          },
          {
            "code": "1208961006",
            "description": "Non-motor epileptic seizure",
            "attributes": null
          },
          {
            "code": "1208966001",
            "description": "Generalized onset motor epileptic seizure",
            "attributes": null
          },
          {
            "code": "1208968000",
            "description": "Generalized onset atonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1208969008",
            "description": "Generalized onset tonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1208970009",
            "description": "Generalized onset clonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1208971008",
            "description": "Generalized onset myoclonic-atonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1208972001",
            "description": "Generalized onset myoclonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1208973006",
            "description": "Generalized onset myoclonic-tonic-clonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1208991001",
            "description": "Myoclonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1217136003",
            "description": "Tonic-clonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1217209006",
            "description": "Generalized onset tonic-clonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1220594007",
            "description": "Pierpont syndrome",
            "attributes": null
          },
          {
            "code": "1222656005",
            "description": "Synaptic Ras GTPase activating protein 1-related developmental and epileptic encephalopathy",
            "attributes": null
          },
          {
            "code": "1222659003",
            "description": "Ring finger protein 13-related severe early-onset epileptic encephalopathy",
            "attributes": null
          },
          {
            "code": "1222662000",
            "description": "Neonatal epileptic encephalopathy due to deficiency of glutaminase",
            "attributes": null
          },
          {
            "code": "122601000000109",
            "description": "Juvenile myoclonic epilepsy",
            "attributes": null
          },
          {
            "code": "122621000000100",
            "description": "Drug-induced epilepsy",
            "attributes": null
          },
          {
            "code": "122631000000103",
            "description": "Menstrual epilepsy",
            "attributes": null
          },
          {
            "code": "122641000000107",
            "description": "Stress-induced epilepsy",
            "attributes": null
          },
          {
            "code": "122651000000105",
            "description": "Photosensitive epilepsy",
            "attributes": null
          },
          {
            "code": "1228857005",
            "description": "Progressive myoclonic epilepsy type 9",
            "attributes": null
          },
          {
            "code": "1230376005",
            "description": "Contactin associated protein 2-related developmental and epileptic encephalopathy",
            "attributes": null
          },
          {
            "code": "1231282002",
            "description": "Self-limited familial neonatal-infantile epilepsy",
            "attributes": null
          },
          {
            "code": "1231737000",
            "description": "Rolandic epilepsy, paroxysmal exercise-induced dystonia, writer's cramp syndrome",
            "attributes": null
          },
          {
            "code": "1236807002",
            "description": "Encephalopathy due to mitochondrial and peroxisomal fission defect",
            "attributes": null
          },
          {
            "code": "1236975007",
            "description": "Behavioral arrest epileptic seizure",
            "attributes": null
          },
          {
            "code": "1237571004",
            "description": "Self-limited familial infantile epilepsy",
            "attributes": null
          },
          {
            "code": "1259196009",
            "description": "Focal onset nonmotor onset epileptic seizure",
            "attributes": null
          },
          {
            "code": "1259197000",
            "description": "Focal onset myoclonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1259198005",
            "description": "Impaired awareness epileptic seizure",
            "attributes": null
          },
          {
            "code": "1260117009",
            "description": "Combined focal and generalized epilepsy",
            "attributes": null
          },
          {
            "code": "1260368003",
            "description": "Epilepsy due to Rasmussen syndrome",
            "attributes": null
          },
          {
            "code": "1260369006",
            "description": "Epilepsy due to perinatal intraventricular hemorrhage",
            "attributes": null
          },
          {
            "code": "1260370007",
            "description": "Epilepsy due to perinatal periventricular hemorrhage",
            "attributes": null
          },
          {
            "code": "1260371006",
            "description": "Epilepsy due to perinatal cerebral ischemia",
            "attributes": null
          },
          {
            "code": "1260374003",
            "description": "Epilepsy due to congenital infectious disease",
            "attributes": null
          },
          {
            "code": "1260375002",
            "description": "Epilepsy due to glucose transporter protein type 1 deficiency syndrome",
            "attributes": null
          },
          {
            "code": "1260377005",
            "description": "Epilepsy due to congenital anomaly of brain",
            "attributes": null
          },
          {
            "code": "1260407007",
            "description": "Genetic generalized epilepsy",
            "attributes": null
          },
          {
            "code": "1264275009",
            "description": "Focal onset automatism epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269236003",
            "description": "Primary hypomagnesemia, refractory seizures, intellectual disability syndrome",
            "attributes": null
          },
          {
            "code": "1269356000",
            "description": "Focal onset aware automatism epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269358004",
            "description": "Focal onset impaired awareness motor onset epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269359007",
            "description": "Focal onset epileptic spasms",
            "attributes": null
          },
          {
            "code": "1269360002",
            "description": "Focal onset tonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269361003",
            "description": "Focal onset aware tonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269362005",
            "description": "Focal onset impaired awareness tonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269363000",
            "description": "Focal onset clonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269364006",
            "description": "Focal onset aware clonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269365007",
            "description": "Focal onset impaired awareness clonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269366008",
            "description": "Focal onset atonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269367004",
            "description": "Focal onset aware atonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269368009",
            "description": "Focal onset impaired awareness atonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269369001",
            "description": "Focal onset aware myoclonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269370000",
            "description": "Focal onset impaired awareness myoclonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269371001",
            "description": "Focal onset hyperkinetic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269372008",
            "description": "Focal onset aware hyperkinetic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269373003",
            "description": "Focal onset impaired awareness hyperkinetic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1269374009",
            "description": "Focal onset impaired awareness automatism epileptic seizure",
            "attributes": null
          },
          {
            "code": "127324008",
            "description": "Myoclonic disorder",
            "attributes": null
          },
          {
            "code": "1275631007",
            "description": "Developmental and epileptic encephalopathy",
            "attributes": null
          },
          {
            "code": "1279990000",
            "description": "Focal onset aware nonmotor onset epileptic seizure",
            "attributes": null
          },
          {
            "code": "1279991001",
            "description": "Focal onset impaired awareness nonmotor onset epileptic seizure",
            "attributes": null
          },
          {
            "code": "1281831009",
            "description": "Focal onset behavior arrest epileptic seizure",
            "attributes": null
          },
          {
            "code": "1281832002",
            "description": "Focal onset aware behavior arrest epileptic seizure",
            "attributes": null
          },
          {
            "code": "1281833007",
            "description": "Focal onset impaired awareness behavior arrest epileptic seizure",
            "attributes": null
          },
          {
            "code": "1281834001",
            "description": "Focal onset impaired awareness cognitive epileptic seizure",
            "attributes": null
          },
          {
            "code": "1281835000",
            "description": "Focal onset autonomic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1281836004",
            "description": "Focal onset impaired awareness autonomic epileptic seizure",
            "attributes": null
          },
          {
            "code": "1281837008",
            "description": "Focal onset aware emotional epileptic seizure",
            "attributes": null
          },
          {
            "code": "1281838003",
            "description": "Focal onset impaired awareness emotional epileptic seizure",
            "attributes": null
          },
          {
            "code": "1281839006",
            "description": "Focal onset sensory epileptic seizure",
            "attributes": null
          },
          {
            "code": "1281840008",
            "description": "Impaired awareness nonmotor onset epileptic seizure",
            "attributes": null
          },
          {
            "code": "1284864005",
            "description": "Focal onset impaired awareness sensory epileptic seizure",
            "attributes": null
          },
          {
            "code": "1284865006",
            "description": "Focal onset cognitive epileptic seizure with memory impairment",
            "attributes": null
          },
          {
            "code": "1285078002",
            "description": "Focal onset emotional epileptic seizure",
            "attributes": null
          },
          {
            "code": "128612007",
            "description": "Focal onset motor onset epileptic seizure",
            "attributes": null
          },
          {
            "code": "1299164006",
            "description": "Status epilepticus with prominent motor symptoms",
            "attributes": null
          },
          {
            "code": "1299165007",
            "description": "Myoclonic status epilepticus",
            "attributes": null
          },
          {
            "code": "1299166008",
            "description": "Generalized tonic-clonic status epilepticus",
            "attributes": null
          },
          {
            "code": "1299167004",
            "description": "Focal to bilateral tonic-clonic status epilepticus",
            "attributes": null
          },
          {
            "code": "1300128003",
            "description": "Methenyltetrahydrofolate synthetase-related developmental delay, microcephaly, short stature, epilepsy syndrome",
            "attributes": null
          },
          {
            "code": "1303273003",
            "description": "Interferon regulatory factor 2 binding protein like-related regressive neurodevelopmental disorder, dystonia, seizures syndrome",
            "attributes": null
          },
          {
            "code": "13973009",
            "description": "Tonic-clonic status epilepticus",
            "attributes": null
          },
          {
            "code": "14401000119109",
            "description": "Partial frontal lobe epilepsy",
            "attributes": null
          },
          {
            "code": "14521008",
            "description": "Focal onset sensory epileptic seizure with visual symptoms",
            "attributes": null
          },
          {
            "code": "147945002",
            "description": "Nocturnal epilepsy",
            "attributes": null
          },
          {
            "code": "155036009",
            "description": "(Epilepsy) or (epileptic attack)",
            "attributes": null
          },
          {
            "code": "155037000",
            "description": "Childhood absence epilepsy",
            "attributes": null
          },
          {
            "code": "155038005",
            "description": "Generalised epilepsy",
            "attributes": null
          },
          {
            "code": "155040000",
            "description": "Temporal lobe epilepsy",
            "attributes": null
          },
          {
            "code": "155042008",
            "description": "West syndrome",
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          },
          {
            "code": "155043003",
            "description": "Generalised epilepsy",
            "attributes": null
          },
          {
            "code": "155044009",
            "description": "Localisation-related epilepsy",
            "attributes": null
          },
          {
            "code": "155045005",
            "description": "Epilepsy NOS",
            "attributes": null
          },
          {
            "code": "15523002",
            "description": "Self-limited focal epilepsy",
            "attributes": null
          },
          {
            "code": "157437008",
            "description": "Traumatic epilepsy",
            "attributes": null
          },
          {
            "code": "170714002",
            "description": "Nocturnal epilepsy",
            "attributes": null
          },
          {
            "code": "187931000119106",
            "description": "Atypical absence epilepsy",
            "attributes": null
          },
          {
            "code": "189198006",
            "description": "Epileptic drop attack",
            "attributes": null
          },
          {
            "code": "192567003",
            "description": "Acquired epileptic aphasia",
            "attributes": null
          },
          {
            "code": "192728006",
            "description": "Rasmussen syndrome",
            "attributes": null
          },
          {
            "code": "192845009",
            "description": "Myoclonic encephalopathy",
            "attributes": null
          },
          {
            "code": "192979009",
            "description": "Generalized non-convulsive epilepsy",
            "attributes": null
          },
          {
            "code": "192980007",
            "description": "Childhood absence epilepsy",
            "attributes": null
          },
          {
            "code": "192981006",
            "description": "Atonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "192982004",
            "description": "Epileptic seizures - akinetic",
            "attributes": null
          },
          {
            "code": "192983009",
            "description": "Juvenile absence epilepsy",
            "attributes": null
          },
          {
            "code": "192984003",
            "description": "Lennox-Gastaut syndrome",
            "attributes": null
          },
          {
            "code": "192985002",
            "description": "Other specified generalized non-convulsive epilepsy",
            "attributes": null
          },
          {
            "code": "192987005",
            "description": "Generalized non-convulsive epilepsy NOS",
            "attributes": null
          },
          {
            "code": "192989008",
            "description": "Generalised epilepsy",
            "attributes": null
          },
          {
            "code": "192990004",
            "description": "Myoclonic epilepsy in infancy",
            "attributes": null
          },
          {
            "code": "192991000",
            "description": "Clonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "192992007",
            "description": "Epileptic seizures - myoclonic",
            "attributes": null
          },
          {
            "code": "192993002",
            "description": "Tonic epileptic seizure",
            "attributes": null
          },
          {
            "code": "192994008",
            "description": "Generalised epilepsy",
            "attributes": null
          },
          {
            "code": "192996005",
            "description": "Other specified generalized convulsive epilepsy",
            "attributes": null
          },
          {
            "code": "192997001",
            "description": "Generalized convulsive epilepsy NOS",
            "attributes": null
          },
          {
            "code": "192999003",
            "description": "Partial epilepsy with impairment of consciousness",
            "attributes": null
          },
          {
            "code": "193000002",
            "description": "Temporal lobe epilepsy",
            "attributes": null
          },
          {
            "code": "193001003",
            "description": "Psychomotor epilepsy",
            "attributes": null
          },
          {
            "code": "193002005",
            "description": "Psychosensory epilepsy",
            "attributes": null
          },
          {
            "code": "193003000",
            "description": "Mesiobasal limbic temporal lobe epilepsy",
            "attributes": null
          },
          {
            "code": "193004006",
            "description": "Epileptic automatism",
            "attributes": null
          },
          {
            "code": "193005007",
            "description": "Partial epilepsy with impairment of consciousness NOS",
            "attributes": null
          },
          {
            "code": "193006008",
            "description": "Partial epilepsy without mention of impairment of consciousness",
            "attributes": null
          },
          {
            "code": "193008009",
            "description": "Somatosensory epilepsy",
            "attributes": null
          },
          {
            "code": "193009001",
            "description": "Partial epilepsy with autonomic symptoms",
            "attributes": null
          },
          {
            "code": "193010006",
            "description": "Visual reflex epilepsy",
            "attributes": null
          },
          {
            "code": "193011005",
            "description": "Unilateral epilepsy",
            "attributes": null
          },
          {
            "code": "193012003",
            "description": "Other specified partial epilepsy without mention of impairment of consciousness",
            "attributes": null
          },
          {
            "code": "193013008",
            "description": "Partial epilepsy without mention of impairment of consciousness NOS",
            "attributes": null
          },
          {
            "code": "193014002",
            "description": "West syndrome",
            "attributes": null
          },
          {
            "code": "193015001",
            "description": "West syndrome",
            "attributes": null
          },
          {
            "code": "193017009",
            "description": "Kojevnikov's epilepsy",
            "attributes": null
          },
          {
            "code": "193020001",
            "description": "Other forms of epilepsy",
            "attributes": null
          },
          {
            "code": "193021002",
            "description": "Cursive (running) epilepsy",
            "attributes": null
          },
          {
            "code": "193022009",
            "description": "Localization-related(focal)(partial)idiopathic epilepsy and epileptic syndromes with seizures of localized onset",
            "attributes": null
          },
          {
            "code": "193024005",
            "description": "Benign childhood epilepsy with centrotemporal spike",
            "attributes": null
          },
          {
            "code": "193025006",
            "description": "Other forms of epilepsy NOS",
            "attributes": null
          },
          {
            "code": "193026007",
            "description": "(Epilepsy NOS) or (fit in known epileptic NOS)",
            "attributes": null
          },
          {
            "code": "194490007",
            "description": "[X]Other generalized epilepsy and epileptic syndromes",
            "attributes": null
          },
          {
            "code": "194491006",
            "description": "[X]Other epilepsy",
            "attributes": null
          },
          {
            "code": "19598007",
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