[
  {
    "phenotype_id": "PH2876",
    "phenotype_version_id": 7333,
    "name": "Palliative care codes",
    "definition": "This codelist was taken from [OpenCodelists](https://www.opencodelists.org/), created by [OpenSAFELY](https://www.opensafely.org/). We recommend viewing this Phenotype on the OpenCodelist website to view the most recent version.\n\n\nTaken from the `PALCARE_COD` refset published by NHSD. Contains public sector information licensed under the UK Open Government Licence v3\\.0 (https://www.nationalarchives.gov.uk/doc/open\\-government\\-licence/version/3/).\n\n\n© University of Oxford for the Bennett Institute for Applied Data Science 2025\\. This work may be copied freely for non\\-commercial research and study.\n\n",
    "implementation": null,
    "publications": null,
    "validation": null,
    "citation_requirements": null,
    "created": "2026-01-26T22:49:48.163040Z",
    "author": "NHSD Primary Care Domain Refsets",
    "collections": [
      {
        "name": "OpenCodelist",
        "value": 31
      },
      {
        "name": "Phenotype Library",
        "value": 18
      }
    ],
    "tags": null,
    "organisation": {
      "id": 1,
      "slug": "opensafely",
      "name": "OpenSAFELY"
    },
    "world_access": 1,
    "updated": "2026-01-26T22:49:51.885984Z",
    "references": [
      {
        "url": "https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-collections/quality-and-outcomes-framework-qof/quality-and-outcome-framework-qof-business-rules/primary-care-domain-reference-set-portal",
        "title": "Primary Care Domain Reference Set Portal"
      }
    ],
    "signed_off": [],
    "methodology": "",
    "coding_system": [
      {
        "name": "SNOMED  CT codes",
        "value": 9
      }
    ],
    "open_codelist_id": "nhsd-primary-care-domain-refsets/palcare_cod",
    "source_reference": "https://www.opencodelists.org/codelist/nhsd-primary-care-domain-refsets/palcare_cod/20250912",
    "concept_information": [
      {
        "concept_id": 7510,
        "concept_version_id": 14995,
        "concept_name": "nhsd-primary-care-domain-refsets/palcare_cod/20250912",
        "coding_system": {
          "id": 9,
          "name": "SNOMED  CT codes",
          "description": "SNOMED CT codes"
        },
        "phenotype_id": "PH2876",
        "phenotype_version_id": 7333,
        "phenotype_name": "Palliative care codes",
        "code_attribute_header": [],
        "codes": [
          {
            "code": "1025611000000105",
            "description": "End of life care plan offered",
            "attributes": null
          },
          {
            "code": "1034241000000106",
            "description": "Has end of life care key general practitioner",
            "attributes": null
          },
          {
            "code": "103735009",
            "description": "Palliative care",
            "attributes": null
          },
          {
            "code": "1091311000000108",
            "description": "Referral to end of life care service",
            "attributes": null
          },
          {
            "code": "1092551000000109",
            "description": "Under care of hospice at home service",
            "attributes": null
          },
          {
            "code": "1092801000000106",
            "description": "Palliative care phase measure phase",
            "attributes": null
          },
          {
            "code": "1095091000000103",
            "description": "End of life advance care planning declined",
            "attributes": null
          },
          {
            "code": "1095131000000100",
            "description": "Offer of end of life advance care plan review",
            "attributes": null
          },
          {
            "code": "1095151000000107",
            "description": "Has end of life advance care plan",
            "attributes": null
          },
          {
            "code": "1095161000000105",
            "description": "End of life advance care plan review declined",
            "attributes": null
          },
          {
            "code": "1099101000000108",
            "description": "Assessment using Palliative Care Outcomes Collaboration assessment tools",
            "attributes": null
          },
          {
            "code": "1129411000000100",
            "description": "Canadian Study of Health and Aging Clinical Frailty Scale level 9 - terminally ill",
            "attributes": null
          },
          {
            "code": "1403151000000103",
            "description": "On palliative care register",
            "attributes": null
          },
          {
            "code": "1413121000000106",
            "description": "Limited life expectancy of more than one year",
            "attributes": null
          },
          {
            "code": "162608008",
            "description": "Terminal illness - late stage",
            "attributes": null
          },
          {
            "code": "1751111000000104",
            "description": "Completion of SR1 form",
            "attributes": null
          },
          {
            "code": "182964004",
            "description": "Terminal care",
            "attributes": null
          },
          {
            "code": "183569005",
            "description": "Refer to terminal care consult",
            "attributes": null
          },
          {
            "code": "183595007",
            "description": "Refer for terminal care",
            "attributes": null
          },
          {
            "code": "1841000124106",
            "description": "Palliative care medication review",
            "attributes": null
          },
          {
            "code": "201511000000105",
            "description": "Under care of palliative care service",
            "attributes": null
          },
          {
            "code": "25411000000109",
            "description": "Referred to community specialist palliative care team",
            "attributes": null
          },
          {
            "code": "305496007",
            "description": "Under care of palliative care physician",
            "attributes": null
          },
          {
            "code": "305686008",
            "description": "Seen by palliative care physician",
            "attributes": null
          },
          {
            "code": "305824005",
            "description": "Seen by palliative care medicine service",
            "attributes": null
          },
          {
            "code": "306237005",
            "description": "Referral to palliative care service",
            "attributes": null
          },
          {
            "code": "306288008",
            "description": "Referral to palliative care physician",
            "attributes": null
          },
          {
            "code": "376201000000102",
            "description": "Issue of palliative care anticipatory medication box",
            "attributes": null
          },
          {
            "code": "395103003",
            "description": "Final days pathway",
            "attributes": null
          },
          {
            "code": "395669003",
            "description": "Specialist palliative care treatment",
            "attributes": null
          },
          {
            "code": "395670002",
            "description": "Specialist palliative care treatment - inpatient",
            "attributes": null
          },
          {
            "code": "395694002",
            "description": "Specialist palliative care treatment - daycare",
            "attributes": null
          },
          {
            "code": "395695001",
            "description": "Specialist palliative care treatment - outpatient",
            "attributes": null
          },
          {
            "code": "414937009",
            "description": "On gold standards palliative care framework",
            "attributes": null
          },
          {
            "code": "443761007",
            "description": "Anticipatory palliative care",
            "attributes": null
          },
          {
            "code": "511401000000102",
            "description": "Last days of life",
            "attributes": null
          },
          {
            "code": "514591000000108",
            "description": "Completion of DS1500 terminal illness medical report",
            "attributes": null
          },
          {
            "code": "518901000000101",
            "description": "Gold standards framework supportive care stage 1 - advancing disease",
            "attributes": null
          },
          {
            "code": "518941000000103",
            "description": "Gold standards framework supportive care stage 2 - increasing decline",
            "attributes": null
          },
          {
            "code": "519041000000106",
            "description": "Gold standards framework supportive care stage 3 - last days: category C - weeks prognosis",
            "attributes": null
          },
          {
            "code": "519061000000107",
            "description": "Gold standards framework supportive care stage 3 - last days: category D - days prognosis",
            "attributes": null
          },
          {
            "code": "526631000000108",
            "description": "On end of life care register",
            "attributes": null
          },
          {
            "code": "707988003",
            "description": "Last days of life discussed",
            "attributes": null
          },
          {
            "code": "713058002",
            "description": "End of life care planning",
            "attributes": null
          },
          {
            "code": "713673000",
            "description": "Has end of life care plan",
            "attributes": null
          },
          {
            "code": "718890006",
            "description": "Assessment using Integrated Palliative care Outcome Scale Staff Version (3 day recall period)",
            "attributes": null
          },
          {
            "code": "718893008",
            "description": "Assessment using Integrated Palliative care Outcome Scale 5 Patient Version (1 week recall period)",
            "attributes": null
          },
          {
            "code": "718895001",
            "description": "Assessment using Integrated Palliative care Outcome Scale Staff Version (1 week recall period)",
            "attributes": null
          },
          {
            "code": "718898004",
            "description": "Assessment using Integrated Palliative care Outcome Scale 5 Patient Version (3 day recall period)",
            "attributes": null
          },
          {
            "code": "718899007",
            "description": "Assessment using Integrated Palliative care Outcome Scale Patient Version (3 day recall period)",
            "attributes": null
          },
          {
            "code": "718901003",
            "description": "Assessment using Integrated Palliative care Outcome Scale 5 Staff Version (1 week recall period)",
            "attributes": null
          },
          {
            "code": "718903000",
            "description": "Assessment using Integrated Palliative care Outcome Scale 5 Staff Version (3 day recall period)",
            "attributes": null
          },
          {
            "code": "718904006",
            "description": "Assessment using Integrated Palliative care Outcome Scale Patient Version (1 week recall period)",
            "attributes": null
          },
          {
            "code": "719238004",
            "description": "Has end of life care key nurse",
            "attributes": null
          },
          {
            "code": "719240009",
            "description": "Has end of life care key worker",
            "attributes": null
          },
          {
            "code": "754401000000106",
            "description": "Gold standards framework supportive care stage 3 - last days: category B - months prognosis",
            "attributes": null
          },
          {
            "code": "761866001",
            "description": "Palliative care Outcome Scale symptom list for end-stage renal disease score",
            "attributes": null
          },
          {
            "code": "767503006",
            "description": "Limited life expectancy of approximately one year",
            "attributes": null
          },
          {
            "code": "783841000000101",
            "description": "Referral to community palliative care team declined",
            "attributes": null
          },
          {
            "code": "783941000000105",
            "description": "Liverpool care pathway for the dying patient declined",
            "attributes": null
          },
          {
            "code": "818221000000103",
            "description": "On Liverpool care pathway for the dying",
            "attributes": null
          },
          {
            "code": "845701000000104",
            "description": "Gold standards framework prognostic indicator stage A (blue) - year plus prognosis",
            "attributes": null
          },
          {
            "code": "845721000000108",
            "description": "Gold standards framework prognostic indicator stage B (green) - months prognosis",
            "attributes": null
          },
          {
            "code": "845751000000103",
            "description": "Gold standards framework prognostic indicator stage C (yellow) - weeks prognosis",
            "attributes": null
          },
          {
            "code": "845771000000107",
            "description": "Gold standards framework prognostic indicator stage D (red) - days prognosis",
            "attributes": null
          },
          {
            "code": "846161000000108",
            "description": "Palliative care handover form completed",
            "attributes": null
          },
          {
            "code": "847771000000100",
            "description": "End of life care pathway",
            "attributes": null
          },
          {
            "code": "850951000000107",
            "description": "Under care of palliative care specialist nurse",
            "attributes": null
          },
          {
            "code": "854021000000106",
            "description": "Ambulance service notified of patient on end of life care register",
            "attributes": null
          },
          {
            "code": "871021000000106",
            "description": "Prescription of palliative care anticipatory medication",
            "attributes": null
          },
          {
            "code": "873411000000105",
            "description": "Liverpool care pathway for the dying",
            "attributes": null
          },
          {
            "code": "874311000000104",
            "description": "Integrated care priorities for end of life",
            "attributes": null
          },
          {
            "code": "902471000000105",
            "description": "Palliative Care Problem Severity Score",
            "attributes": null
          },
          {
            "code": "902501000000103",
            "description": "Palliative Care Problem Severity Score - pain",
            "attributes": null
          },
          {
            "code": "902511000000101",
            "description": "Palliative Care Problem Severity Score - other symptoms",
            "attributes": null
          },
          {
            "code": "902521000000107",
            "description": "Palliative Care Problem Severity Score - psychological/spiritual",
            "attributes": null
          },
          {
            "code": "902531000000109",
            "description": "Palliative Care Problem Severity Score - family/carer",
            "attributes": null
          },
          {
            "code": "955231000000109",
            "description": "Last weeks of life",
            "attributes": null
          },
          {
            "code": "968211000000101",
            "description": "Last months of life",
            "attributes": null
          }
        ]
      }
    ],
    "coding_system_release": "",
    "open_codelist_version_id": "2e36b4a5",
    "open_codelist_version_tag": "20250912",
    "status": 1,
    "doi": "https://doi.org/10.48533/eggh-pg15",
    "is_deleted": false,
    "publish_status": 2,
    "owner": "ieuan.scanlon",
    "template": {
      "id": 3,
      "name": "OpenCodelists Phenotype",
      "description": "OpenSafely's OpenCodelist Phenotype, visit https://www.opencodelists.org/ to learn more",
      "version_id": 1
    },
    "versions": [
      {
        "version_id": 7333,
        "version_name": "Palliative care codes",
        "version_date": "2026-01-26T22:49:51.901044Z",
        "is_published": true,
        "is_latest": true
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        "version_name": "Palliative care codes",
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  }
]