[
  {
    "phenotype_id": "PH3394",
    "phenotype_version_id": 8416,
    "name": "Dementia (Complete)",
    "definition": "This codelist was taken from [OpenCodelists](https://www.opencodelists.org/), created by [OpenSAFELY](https://www.opensafely.org/). We recommend viewing this Phenotype on the OpenCodelist website to view the most recent version.\n\n\nThis codelist captures Dementia and Alzheimers Disease. Discussion here: https://github.com/opensafely/codelist\\-development/issues/61\n\n\n© University of Oxford for the Bennett Institute for Applied Data Science 2025\\. This work may be copied freely for non\\-commercial research and study.\n\n",
    "implementation": null,
    "publications": null,
    "validation": null,
    "citation_requirements": null,
    "created": "2026-01-26T23:15:00.053745Z",
    "author": "OpenSAFELY",
    "collections": [
      {
        "name": "OpenCodelist",
        "value": 31
      },
      {
        "name": "Phenotype Library",
        "value": 18
      }
    ],
    "tags": null,
    "organisation": {
      "id": 1,
      "slug": "opensafely",
      "name": "OpenSAFELY"
    },
    "world_access": 1,
    "updated": "2026-01-26T23:15:03.025294Z",
    "references": [],
    "signed_off": [],
    "methodology": "Inclusion Criteria:\n\n\nAll clinical findings containing a mention of Dementia\nDementia monitoring, reviews and exception reporting\nAll clinical findings containing a mention of Alzheimer’s disease\nSenile and presenile organic psychotic conditions\nOther:\nCerebral Degeneration \\- With Dementia, due to Progressive multifocal leucoencephalopathy or due to Parkinson's\nCreutzfeldt\\-Jakob disease\nKorsakoff/Korsakov psychosis\n\n\nExclusion Criteria:\n\n\nCerebral or Brain degeneration, unless there is mention of dementia, or its due to progressive multifocal leucoencephalopathy \\- or parkinsons disease\nDrugs used to treat Dementia\nDementia Care Plan\nDementia/Alzheimer Referrals\nTests or assessments for dementia/alzheimer's\nDelerium (without mention of dementia)\nDevelopment disorders\nReye's syndrome\nCharles Bonnet syndrome\nOrganic hallucinosis\nChronic alcoholic brain syndrome\nSuspected Dementia\nLimbic Encephalitis\nProgressive aphasia and Non\\-Alzheimer's progressive dysphasia\nFamilial fatal insomnia\n\n",
    "coding_system": [
      {
        "name": "Read codes v3",
        "value": 6
      }
    ],
    "open_codelist_id": "opensafely/dementia-complete",
    "source_reference": "https://www.opencodelists.org/codelist/opensafely/dementia-complete/48c76cf8",
    "concept_information": [
      {
        "concept_id": 8593,
        "concept_version_id": 16078,
        "concept_name": "opensafely/dementia-complete/48c76cf8",
        "coding_system": {
          "id": 6,
          "name": "Read codes v3",
          "description": "Read codes v3"
        },
        "phenotype_id": "PH3394",
        "phenotype_version_id": 8416,
        "phenotype_name": "Dementia (Complete)",
        "code_attribute_header": [],
        "codes": [
          {
            "code": "1461.",
            "description": "H/O: dementia",
            "attributes": null
          },
          {
            "code": "A410.",
            "description": "Kuru",
            "attributes": null
          },
          {
            "code": "A411.",
            "description": "Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "E00..",
            "description": "Senile and presenile organic psychot conditions (& dementia)",
            "attributes": null
          },
          {
            "code": "E000.",
            "description": "Uncomplicated senile dementia",
            "attributes": null
          },
          {
            "code": "E001.",
            "description": "Presenile dementia",
            "attributes": null
          },
          {
            "code": "E0010",
            "description": "Uncomplicated presenile dementia",
            "attributes": null
          },
          {
            "code": "E0011",
            "description": "Presenile dementia with delirium",
            "attributes": null
          },
          {
            "code": "E0012",
            "description": "Presenile dementia with paranoia",
            "attributes": null
          },
          {
            "code": "E0013",
            "description": "Presenile dementia with depression",
            "attributes": null
          },
          {
            "code": "E001z",
            "description": "Presenile dementia NOS",
            "attributes": null
          },
          {
            "code": "E002.",
            "description": "Senile dementia with depressive or paranoid features",
            "attributes": null
          },
          {
            "code": "E0020",
            "description": "Senile dementia with paranoia",
            "attributes": null
          },
          {
            "code": "E0021",
            "description": "Senile dementia with depression",
            "attributes": null
          },
          {
            "code": "E002z",
            "description": "Senile dementia with depressive or paranoid features NOS",
            "attributes": null
          },
          {
            "code": "E003.",
            "description": "Senile dementia with delirium",
            "attributes": null
          },
          {
            "code": "E004.",
            "description": "Arteriosclerotic dementia (including [multi infarct dement])",
            "attributes": null
          },
          {
            "code": "E0040",
            "description": "Uncomplicated arteriosclerotic dementia",
            "attributes": null
          },
          {
            "code": "E0041",
            "description": "Arteriosclerotic dementia with delirium",
            "attributes": null
          },
          {
            "code": "E0042",
            "description": "Arteriosclerotic dementia with paranoia",
            "attributes": null
          },
          {
            "code": "E0043",
            "description": "Arteriosclerotic dementia with depression",
            "attributes": null
          },
          {
            "code": "E004z",
            "description": "Arteriosclerotic dementia NOS",
            "attributes": null
          },
          {
            "code": "E00y.",
            "description": "(Oth senile/presen org psychoses) or (presbyophren psychos)",
            "attributes": null
          },
          {
            "code": "E00z.",
            "description": "Senile or presenile psychoses NOS",
            "attributes": null
          },
          {
            "code": "E011.",
            "description": "Korsakov psychosis",
            "attributes": null
          },
          {
            "code": "E0110",
            "description": "Korsakov psychosis",
            "attributes": null
          },
          {
            "code": "E0111",
            "description": "Korsakov's alcoholic psychosis with peripheral neuritis",
            "attributes": null
          },
          {
            "code": "E0112",
            "description": "Wernicke-Korsakov syndrome",
            "attributes": null
          },
          {
            "code": "E011z",
            "description": "Alcohol amnestic syndrome NOS",
            "attributes": null
          },
          {
            "code": "E012.",
            "description": "Alcoholic dementia: [other] or [NOS]",
            "attributes": null
          },
          {
            "code": "E040.",
            "description": "Korsakoff's syndrome - non-alcoholic",
            "attributes": null
          },
          {
            "code": "E041.",
            "description": "Dementia in conditions EC",
            "attributes": null
          },
          {
            "code": "Eu00.",
            "description": "[X]Dementia in Alzheimer's disease",
            "attributes": null
          },
          {
            "code": "Eu001",
            "description": "Dementia in Alzheimer's disease with late onset",
            "attributes": null
          },
          {
            "code": "Eu002",
            "description": "[X]Dementia in Alzheimer's dis, atypical or mixed type",
            "attributes": null
          },
          {
            "code": "Eu00z",
            "description": "[X]Dementia in Alzheimer's disease, unspecified",
            "attributes": null
          },
          {
            "code": "Eu01.",
            "description": "Vascular dementia",
            "attributes": null
          },
          {
            "code": "Eu011",
            "description": "[X]Dementia: [multi-infarct] or [predominantly cortical]",
            "attributes": null
          },
          {
            "code": "Eu01y",
            "description": "[X]Other vascular dementia",
            "attributes": null
          },
          {
            "code": "Eu01z",
            "description": "[X]Vascular dementia, unspecified",
            "attributes": null
          },
          {
            "code": "Eu02.",
            "description": "[X]Dementia in other diseases classified elsewhere",
            "attributes": null
          },
          {
            "code": "Eu020",
            "description": "[X]Dementia in Pick's disease",
            "attributes": null
          },
          {
            "code": "Eu021",
            "description": "[X]Dementia in Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "Eu022",
            "description": "[X]Dementia in Huntington's disease",
            "attributes": null
          },
          {
            "code": "Eu023",
            "description": "[X]Dementia in Parkinson's disease",
            "attributes": null
          },
          {
            "code": "Eu02y",
            "description": "[X]Dementia in other specified diseases classif elsewhere",
            "attributes": null
          },
          {
            "code": "Eu02z",
            "description": "[X] Dementia: [unspecified] or [named variants (& NOS)]",
            "attributes": null
          },
          {
            "code": "Eu041",
            "description": "[X]Delirium superimposed on dementia",
            "attributes": null
          },
          {
            "code": "F110.",
            "description": "Alzheimer's disease",
            "attributes": null
          },
          {
            "code": "F1100",
            "description": "Dementia in Alzheimer's disease with early onset",
            "attributes": null
          },
          {
            "code": "F1101",
            "description": "Dementia in Alzheimer's disease with late onset",
            "attributes": null
          },
          {
            "code": "F111.",
            "description": "Pick's disease",
            "attributes": null
          },
          {
            "code": "F11x7",
            "description": "Cerebral degeneration due to Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "F11x8",
            "description": "Cerebral degeneration due to multifocal leucoencephalopathy",
            "attributes": null
          },
          {
            "code": "F21y2",
            "description": "Binswanger's disease",
            "attributes": null
          },
          {
            "code": "Fyu30",
            "description": "[X]Other Alzheimer's disease",
            "attributes": null
          },
          {
            "code": "Ub1T6",
            "description": "Language disorder of dementia",
            "attributes": null
          },
          {
            "code": "X002m",
            "description": "Amyotrophic lateral sclerosis with dementia",
            "attributes": null
          },
          {
            "code": "X002w",
            "description": "Dementia",
            "attributes": null
          },
          {
            "code": "X002x",
            "description": "Dementia in Alzheimer's disease with early onset",
            "attributes": null
          },
          {
            "code": "X002y",
            "description": "Familial Alzheimer's disease of early onset",
            "attributes": null
          },
          {
            "code": "X002z",
            "description": "Non-familial Alzheimer's disease of early onset",
            "attributes": null
          },
          {
            "code": "X0030",
            "description": "Dementia in Alzheimer's disease with late onset",
            "attributes": null
          },
          {
            "code": "X0031",
            "description": "Familial Alzheimer's disease of late onset",
            "attributes": null
          },
          {
            "code": "X0032",
            "description": "Non-familial Alzheimer's disease of late onset",
            "attributes": null
          },
          {
            "code": "X0033",
            "description": "Focal Alzheimer's disease",
            "attributes": null
          },
          {
            "code": "X0034",
            "description": "Frontotemporal dementia",
            "attributes": null
          },
          {
            "code": "X0035",
            "description": "Pick's disease with Pick bodies",
            "attributes": null
          },
          {
            "code": "X0036",
            "description": "Pick's disease with Pick cells and no Pick bodies",
            "attributes": null
          },
          {
            "code": "X0037",
            "description": "Frontotemporal degeneration",
            "attributes": null
          },
          {
            "code": "X0039",
            "description": "Frontal lobe degeneration with motor neurone disease",
            "attributes": null
          },
          {
            "code": "X003A",
            "description": "Lewy body disease",
            "attributes": null
          },
          {
            "code": "X003G",
            "description": "Progressive aphasia in Alzheimer's disease",
            "attributes": null
          },
          {
            "code": "X003H",
            "description": "Argyrophilic brain disease",
            "attributes": null
          },
          {
            "code": "X003I",
            "description": "Post-traumatic dementia",
            "attributes": null
          },
          {
            "code": "X003J",
            "description": "Punch drunk syndrome",
            "attributes": null
          },
          {
            "code": "X003K",
            "description": "Spongiform encephalopathy",
            "attributes": null
          },
          {
            "code": "X003l",
            "description": "Parkinson's disease - dementia complex on Guam",
            "attributes": null
          },
          {
            "code": "X003L",
            "description": "Prion protein disease",
            "attributes": null
          },
          {
            "code": "X003M",
            "description": "Gerstmann-Straussler-Scheinker syndrome",
            "attributes": null
          },
          {
            "code": "X003P",
            "description": "Acquired immune deficiency syndrome dementia complex",
            "attributes": null
          },
          {
            "code": "X003R",
            "description": "Vascular dementia of acute onset",
            "attributes": null
          },
          {
            "code": "X003T",
            "description": "Subcortical vascular dementia",
            "attributes": null
          },
          {
            "code": "X003V",
            "description": "Mixed cortical and subcortical vascular dementia",
            "attributes": null
          },
          {
            "code": "X003W",
            "description": "Semantic dementia",
            "attributes": null
          },
          {
            "code": "X003X",
            "description": "Patchy dementia",
            "attributes": null
          },
          {
            "code": "X003Y",
            "description": "Epileptic dementia",
            "attributes": null
          },
          {
            "code": "X00R0",
            "description": "Presbyophrenic psychosis",
            "attributes": null
          },
          {
            "code": "X00R2",
            "description": "Senile dementia",
            "attributes": null
          },
          {
            "code": "X00Rk",
            "description": "Alcoholic dementia NOS",
            "attributes": null
          },
          {
            "code": "X73mf",
            "description": "Creutzfeldt-Jakob disease agent",
            "attributes": null
          },
          {
            "code": "X73mj",
            "description": "Bovine spongiform encephalopathy agent",
            "attributes": null
          },
          {
            "code": "Xa0lH",
            "description": "Multi-infarct dementia",
            "attributes": null
          },
          {
            "code": "Xa0sC",
            "description": "Frontal lobe degeneration",
            "attributes": null
          },
          {
            "code": "Xa0sE",
            "description": "Dementia of frontal lobe type",
            "attributes": null
          },
          {
            "code": "Xa1GB",
            "description": "Cerebral degeneration presenting primarily with dementia",
            "attributes": null
          },
          {
            "code": "Xa25J",
            "description": "Alcoholic dementia",
            "attributes": null
          },
          {
            "code": "Xa3ez",
            "description": "Other senile/presenile dementia",
            "attributes": null
          },
          {
            "code": "XaA1S",
            "description": "New variant of Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "XabtQ",
            "description": "Dementia medication review",
            "attributes": null
          },
          {
            "code": "XabVp",
            "description": "Sporadic Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "XaE74",
            "description": "Senile dementia of the Lewy body type",
            "attributes": null
          },
          {
            "code": "Xaghb",
            "description": "Predominantly cortical dementia",
            "attributes": null
          },
          {
            "code": "XaIKB",
            "description": "Alzheimer's disease with early onset",
            "attributes": null
          },
          {
            "code": "XaIKC",
            "description": "Alzheimer's disease with late onset",
            "attributes": null
          },
          {
            "code": "XaKyY",
            "description": "[X]Lewy body dementia",
            "attributes": null
          },
          {
            "code": "XaLFf",
            "description": "Exception reporting: dementia quality indicators",
            "attributes": null
          },
          {
            "code": "XaLFo",
            "description": "Excepted from dementia quality indicators: Patient unsuitabl",
            "attributes": null
          },
          {
            "code": "XaLFp",
            "description": "Excepted from dementia quality indicators: Informed dissent",
            "attributes": null
          },
          {
            "code": "XaMAo",
            "description": "Prion protein markers for Creutzfeldt-Jakob disease",
            "attributes": null
          },
          {
            "code": "XaMFy",
            "description": "Dementia monitoring administration",
            "attributes": null
          },
          {
            "code": "XaMG0",
            "description": "Dementia monitoring first letter",
            "attributes": null
          },
          {
            "code": "XaMGF",
            "description": "Dementia annual review",
            "attributes": null
          },
          {
            "code": "XaMGG",
            "description": "Dementia monitoring second letter",
            "attributes": null
          },
          {
            "code": "XaMGI",
            "description": "Dementia monitoring third letter",
            "attributes": null
          },
          {
            "code": "XaMGJ",
            "description": "Dementia monitoring verbal invite",
            "attributes": null
          },
          {
            "code": "XaMGK",
            "description": "Dementia monitoring telephone invite",
            "attributes": null
          },
          {
            "code": "XaMJC",
            "description": "Dementia monitoring",
            "attributes": null
          },
          {
            "code": "XaZWz",
            "description": "Participates in Butterfly Scheme for dementia",
            "attributes": null
          },
          {
            "code": "XaZX0",
            "description": "Butterfly Scheme for dementia declined",
            "attributes": null
          },
          {
            "code": "XE1aG",
            "description": "Dementia (& [presenile] or [senile])",
            "attributes": null
          },
          {
            "code": "XE1Xr",
            "description": "Senile and presenile organic psychotic conditions",
            "attributes": null
          },
          {
            "code": "XE1Xs",
            "description": "Vascular dementia",
            "attributes": null
          },
          {
            "code": "XE1Xt",
            "description": "Other senile and presenile organic psychoses",
            "attributes": null
          },
          {
            "code": "XE1Xu",
            "description": "Other alcoholic dementia",
            "attributes": null
          },
          {
            "code": "XE1Z6",
            "description": "[X]Unspecified dementia",
            "attributes": null
          },
          {
            "code": "Y000c",
            "description": "Dementia review done",
            "attributes": null
          },
          {
            "code": "Y1f1d",
            "description": "Dementia monitoring invitation",
            "attributes": null
          },
          {
            "code": "Y1f22",
            "description": "Dementia monitoring invitation",
            "attributes": null
          },
          {
            "code": "Y1f98",
            "description": "Quality and Outcomes Framework dementia quality indicator-related care invitation (procedure)",
            "attributes": null
          },
          {
            "code": "Y23fb",
            "description": "Mixed dementia",
            "attributes": null
          },
          {
            "code": "Y6230",
            "description": "Creutzfeldt - Jakob disease",
            "attributes": null
          },
          {
            "code": "Y8180",
            "description": "Other senile/presenile dement.",
            "attributes": null
          },
          {
            "code": "Y9086",
            "description": "Senile dementia - simple type",
            "attributes": null
          },
          {
            "code": "Y9087",
            "description": "Senile dementia-acute confused",
            "attributes": null
          }
        ]
      }
    ],
    "coding_system_release": "",
    "open_codelist_version_id": "48c76cf8",
    "open_codelist_version_tag": "",
    "status": 1,
    "doi": "https://doi.org/10.48533/kvds-ge38",
    "is_deleted": false,
    "publish_status": 2,
    "owner": "ieuan.scanlon",
    "template": {
      "id": 3,
      "name": "OpenCodelists Phenotype",
      "description": "OpenSafely's OpenCodelist Phenotype, visit https://www.opencodelists.org/ to learn more",
      "version_id": 1
    },
    "versions": [
      {
        "version_id": 8416,
        "version_name": "Dementia (Complete)",
        "version_date": "2026-01-26T23:15:03.037276Z",
        "is_published": true,
        "is_latest": true
      },
      {
        "version_id": 8415,
        "version_name": "Dementia (Complete)",
        "version_date": "2026-01-26T23:15:01.549124Z",
        "is_published": true,
        "is_latest": false
      },
      {
        "version_id": 8414,
        "version_name": "Dementia (Complete)",
        "version_date": "2026-01-26T23:15:00.062766Z",
        "is_published": true,
        "is_latest": false
      }
    ]
  }
]