[
  {
    "phenotype_id": "PH3719",
    "phenotype_version_id": 8843,
    "name": "Sickle Cell Disease",
    "definition": "This codelist was taken from [OpenCodelists](https://www.opencodelists.org/), created by [OpenSAFELY](https://www.opensafely.org/). We recommend viewing this Phenotype on the OpenCodelist website to view the most recent version.\n\n\nCodes indicating diagnosis of sickle cell disease\n\n\n© University of Oxford for the Bennett Institute for Applied Data Science 2025\\. This work may be copied freely for non\\-commercial research and study.\n\n",
    "implementation": null,
    "publications": null,
    "validation": null,
    "citation_requirements": null,
    "created": "2026-01-26T23:31:18.997746Z",
    "author": "OpenSAFELY",
    "collections": [
      {
        "name": "OpenCodelist",
        "value": 31
      },
      {
        "name": "Phenotype Library",
        "value": 18
      }
    ],
    "tags": null,
    "organisation": {
      "id": 1,
      "slug": "opensafely",
      "name": "OpenSAFELY"
    },
    "world_access": 1,
    "updated": "2026-01-26T23:31:18.992024Z",
    "references": [
      {
        "url": "https://github.com/ebmdatalab/opensafely-codelist-development/issues/4",
        "title": "Discussion on GitHub issue"
      }
    ],
    "signed_off": [],
    "methodology": "Derived from Read V2 codelist provided by LSHTM. See discussion in GitHub issue referenced below\n\n",
    "coding_system": [
      {
        "name": "Read codes v3",
        "value": 6
      }
    ],
    "open_codelist_id": "opensafely/sickle-cell-disease",
    "source_reference": "https://www.opencodelists.org/codelist/opensafely/sickle-cell-disease/2020-04-14",
    "concept_information": [
      {
        "concept_id": 9020,
        "concept_version_id": 16505,
        "concept_name": "opensafely/sickle-cell-disease/2020-04-14",
        "coding_system": {
          "id": 6,
          "name": "Read codes v3",
          "description": "Read codes v3"
        },
        "phenotype_id": "PH3719",
        "phenotype_version_id": 8843,
        "phenotype_name": "Sickle Cell Disease",
        "code_attribute_header": [
          "CTV3Source"
        ],
        "codes": [
          {
            "code": "D106.",
            "description": "Sickle cell anaemia",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "D1060",
            "description": "Sickle cell anaemia of unspecified type",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "D1061",
            "description": "Sickle cell anaemia with no crisis",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "D1062",
            "description": "Sickle cell anaemia with crisis",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "D1063",
            "description": "Haemoglobin S/C disease",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "D1065",
            "description": "Haemoglobin S/E disease",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "D106z",
            "description": "Sickle cell anaemia NOS",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "Dyu12",
            "description": "[X]Other sickle cell disorders",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "F4221",
            "description": "Proliferative retinopathy due to sickle cell disease",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "X20Cw",
            "description": "Sickle cell syndrome",
            "attributes": {
              "CTV3Source": "QOF"
            }
          },
          {
            "code": "X20Cx",
            "description": "Sickle cell anaemia with high haemoglobin F",
            "attributes": {
              "CTV3Source": "CTV3_Children"
            }
          },
          {
            "code": "X30Kx",
            "description": "Sickle cell nephropathy",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "Xa9Ax",
            "description": "Haemoglobin S/beta thalassaemia",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "XabjN",
            "description": "Referral to sickle cell specialist nurse",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          },
          {
            "code": "XaDvR",
            "description": "Homozygous SS genotype",
            "attributes": {
              "CTV3Source": "CTV3Map_Code_And_Term"
            }
          }
        ]
      }
    ],
    "coding_system_release": "",
    "open_codelist_version_id": "55f95977",
    "open_codelist_version_tag": "2020-04-14",
    "status": 1,
    "doi": "https://doi.org/10.48533/xwef-g050",
    "is_deleted": false,
    "publish_status": 2,
    "owner": "ieuan.scanlon",
    "template": {
      "id": 3,
      "name": "OpenCodelists Phenotype",
      "description": "OpenSafely's OpenCodelist Phenotype, visit https://www.opencodelists.org/ to learn more",
      "version_id": 1
    },
    "versions": [
      {
        "version_id": 8843,
        "version_name": "Sickle Cell Disease",
        "version_date": "2026-01-26T23:31:19.004456Z",
        "is_published": true,
        "is_latest": true
      }
    ]
  }
]