[
  {
    "phenotype_id": "PH474",
    "phenotype_version_id": 1515,
    "name": "Incontinence",
    "definition": "We extracted data on 54,816 people aged 60–89 with dementia and an age-gender stratifiedsample of 205,795 people without dementia from 2001 to 2010 from The Health Improvement Network (THIN), a United Kingdom primary care database. THIN includes data on patients and primary care consultations but does not identify care home residents. Rate ratios were adjusted for age, sex, and co-morbidity using multilevel Poisson regression. The rates of first diagnosis per 1,000 person-years at risk (95% confidence interval) for urinary incontinence in the dementia cohort, among men and women, respectively, were 42.3 (40.9–43.8) and 33.5 (32.6–34.5). In the non-dementia cohort, the rates were 19.8 (19.4–20.3) and 18.6 (18.2–18.9). The rates of first diagnosis for faecal incontinence in the dementia cohort were 11.1 (10.4–11.9) and 10.1 (9.6–10.6). In the non-dementia cohort, the rates were 3.1 (2.9–3.3) and 3.6 (3.5–3.8). The adjusted rate ratio for first diagnosis of urinary incontinence was 3.2 (2.7–3.7) in men and 2.7 (2.3–3.2) in women, and for faecal incontinence was 6.0 (5.1–7.0) in men and 4.5 (3.8–5.2) in women. The adjusted rate ratio for pharmacological treatment of urinary incontinence was 2.2 (1.4–3.7) for both genders, and for indwelling urinary catheters was 1.6 (1.3–1.9) in men and 2.3 (1.9–2.8) in women.\n\n\n\n\n\n\n\n\n",
    "implementation": "",
    "publications": [
      {
        "doi": null,
        "details": "Robert L Grant, Vari M Drennan, Greta Rait, Irene Petersen, Steve Iliffe, First Diagnosis and Management of Incontinence in Older People with and without Dementia in Primary Care A Cohort Study Using The Health Improvement Network Primary Care Database. PLOS medicine, 10:8, 2013."
      }
    ],
    "validation": "",
    "citation_requirements": "",
    "created": "2021-10-06T16:21:08.509654Z",
    "author": "Robert L Grant, Vari M Drennan, Greta Rait, Irene Petersen, Steve Iliffe",
    "collections": [
      {
        "name": "ClinicalCodes Repository",
        "value": 25
      },
      {
        "name": "Phenotype Library",
        "value": 18
      }
    ],
    "tags": null,
    "organisation": null,
    "world_access": 1,
    "updated": "2021-10-26T20:18:55.254809Z",
    "sex": [
      {
        "name": "Both",
        "value": "3"
      }
    ],
    "type": [
      {
        "name": "Disease or syndrome",
        "value": "2"
      }
    ],
    "ontology": null,
    "phenoflowid": "",
    "data_sources": [
      {
        "name": "The Health Improvement Network (THIN)",
        "value": 14,
        "uid": "",
        "url": "",
        "datasource_id": 14
      }
    ],
    "coding_system": [
      {
        "name": "Read codes v2",
        "value": 5
      }
    ],
    "event_date_range": "01/01/2001 - 31/12/2010",
    "concept_information": [
      {
        "concept_id": 1833,
        "concept_version_id": 5512,
        "concept_name": "Incontinence - Primary Care",
        "coding_system": {
          "id": 5,
          "name": "Read codes v2",
          "description": "Read codes v2"
        },
        "phenotype_id": "PH474",
        "phenotype_version_id": 1515,
        "phenotype_name": "Incontinence",
        "code_attribute_header": [
          "Category",
          "Coding System (Read)",
          "Entity type"
        ],
        "codes": [
          {
            "code": "1593",
            "description": "H/O: stress incontinence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "16F..00",
            "description": "Double incontinence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "19E3.00",
            "description": "Incontinent of faeces",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "19E3.11",
            "description": "Incontinent of faeces symptom",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "1A23.00",
            "description": "Incontinence of urine",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "1A24.00",
            "description": "Stress incontinence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "1A24.11",
            "description": "Stress incontinence - symptom",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "1A25.00",
            "description": "Urgency",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "1A25.11",
            "description": "Urgency of micturition",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "1A26.00",
            "description": "Urge incontinence of urine",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "1A27.00",
            "description": "Urge to pass urine again shortly after finishing voiding",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "1A27.11",
            "description": "Pis en deux",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "1A36.00",
            "description": "Terminal dribbling of urine",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "1A37.00",
            "description": "Dribbling of urine",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "222K.00",
            "description": "Smells of urine",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "3930",
            "description": "Bowels: incontinent",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "3931",
            "description": "Bowels: occasional accident",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "393..11",
            "description": "Bowels - continence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "393..12",
            "description": "Bowels-incontinence assessment",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "3940",
            "description": "Bladder: incontinent",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "3941",
            "description": "Bladder: occasional accident",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "394..11",
            "description": "Bladder-incontinence assessmnt",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "394..12",
            "description": "Bladder- continence assessment",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "39H..00",
            "description": "Continence assessment",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "39H0.00",
            "description": "Continence reassessment",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "679H.00",
            "description": "Health education - continence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "679H.11",
            "description": "Promotion of continence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "7B31200",
            "description": "Colposuspension of bladder neck",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "7B31211",
            "description": "Burch colposuspension",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "7B33800",
            "description": "Insertion retropubic device stress urinary incontinence NEC",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "7B33C00",
            "description": "Insertion retropubic dev fem stress urinary incontinence NEC",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "7B42100",
            "description": "Insertion of bulbar urethral prosthesis",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "7B42111",
            "description": "Insertion of Kaufman prosthesis for male incontinence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "7B42112",
            "description": "Insertion of prosthesis for compression bulb of male urethra",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "7B42113",
            "description": "Insertion of Rosen prosthesis for male incontinence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "7D17.11",
            "description": "Colporrhaphy and amputation of cervix uteri",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8C14.00",
            "description": "Incontinence care",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8C14.11",
            "description": "Continence care",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8D7..00",
            "description": "Urinary bladder control",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8D71.00",
            "description": "Incontinence control",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8D7..11",
            "description": "Bladder control",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8D7..12",
            "description": "Incontinence control",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8D74.00",
            "description": "Indwelling urethral catheter",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8D74.11",
            "description": "Catheter in situ",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8D75.00",
            "description": "Penile sheath provision",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8D7Z.00",
            "description": "Urinary bladder control NOS",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8E97.00",
            "description": "Bladder training",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8E97000",
            "description": "Bladder drill",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8H7w.00",
            "description": "Referral to continence nurse",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8HR6.00",
            "description": "Refer to Urodynamic studies",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "8HTX.00",
            "description": "Referral to incontinence clinic",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "9Nl8.00",
            "description": "Seen by continence nurse",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "K198.00",
            "description": "Stress incontinence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "K586.00",
            "description": "Stress incontinence - female",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Kyu5A00",
            "description": "[X]Other specified urinary incontinence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "R076.00",
            "description": "[D]Incontinence of faeces",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "R076100",
            "description": "[D]Sphincter ani incontinence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "R076z00",
            "description": "[D]Incontinence of faeces NOS",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "R083.00",
            "description": "[D]Incontinence of urine",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "R083100",
            "description": "[D]Urethral sphincter incontinence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "R083200",
            "description": "[D] Urge incontinence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "R083z00",
            "description": "[D]Incontinence of urine NOS",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "R086200",
            "description": "[D] Urgency of micturition",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z121400",
            "description": "Assisting with toileting",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z1J..00",
            "description": "Procedures to aid continence",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z1J1.00",
            "description": "Taking the patient to toilet",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z1J2.00",
            "description": "Attaching penile sheath",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z1J3.00",
            "description": "Putting incontinence pad on",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z1J4.00",
            "description": "Changing incontinence pad",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z1S..00",
            "description": "Toileting regimes",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z1S1.00",
            "description": "Regular toileting",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z1S2.00",
            "description": "Planned voiding",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z1S2100",
            "description": "Planned voiding two hourly",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z89A.00",
            "description": "Ability to perform toileting activities",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z89A100",
            "description": "Does not perform toileting activities",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z89A200",
            "description": "Difficulty performing toileting activities",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z89AE00",
            "description": "Unable to use urine bottle",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z915.00",
            "description": "Urinary catheter appliance procedures",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "Z915.11",
            "description": "Urinary catheter care",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "ZL22400",
            "description": "Under care of continence nurse",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "ZL62400",
            "description": "Referral to continence nurse",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "ZLA2400",
            "description": "Seen by continence nurse",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "ZLD7400",
            "description": "Discharge by continence nurse",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "ZQ3C.00",
            "description": "Bowels incontinence assessment",
            "attributes": {
              "Category": "diagnostic",
              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          },
          {
            "code": "ZRas400",
            "description": "OPCS continence disability scale",
            "attributes": {
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              "Coding System (Read)": "Read",
              "Entity type": "res11: incontinence"
            }
          }
        ]
      }
    ],
    "status": 2,
    "doi": "https://doi.org/10.48533/pqja-8r74",
    "is_deleted": null,
    "publish_status": 2,
    "owner": "ieuan.scanlon",
    "template": {
      "id": 1,
      "name": "Clinical-Coded Phenotype",
      "description": "Phenotype definitions that are based on lists of clinical codes, or algorithms using clinical codes.",
      "version_id": 1
    },
    "versions": [
      {
        "version_id": 1515,
        "version_name": "Incontinence",
        "version_date": "2021-10-26T20:18:55.486074Z",
        "is_published": true,
        "is_latest": true
      }
    ]
  }
]