Childhood Maltreatment
John, A., McGregor, J., Marchant, A., Delpozobanos, M., Farr, I., Nurmatov, U., Kemp, A., Naughton
PH1115 / 3527 Clinical-Coded Phenotype
Overview
Phenotype TypeDisease or syndromeSexBothValid Event Date RangeNo dataCoding SystemSNOMED CT codesICD10 codesRead codes v2CollectionsAdolescent Data Platform (ADP)DATAMINDPhenotype LibraryTagsNo dataDefinition
This phenotype identifies child maltreatment in children aged 0 to 18 years. It encompasses neglect, physical, sexual maltreatment and other maltreatment. Codes for historical cases of neglect have also been included.
ICD-10 definition
This definition has been reviewed by a clinician in the study team (Prof Ann John) and published (John et. al.,2023).
Read code definition
This definition contains codes for genital mutilation and child protection codes. It has been reviewed by a clinician in the study team (Prof Ann John) and published (John et. al.,2023).
SNOMED CT definition
This definition was developed by mapping the existing ICD-10 and Read code definitions and running complementary SNOMED searches. It also provides a separate concept for historical codes ("History if Child Maltreatment") which may or may not be considered depending on the research question.
Note: The SNOMED CT definition has not undergone validation yet.
References
John, A., McGregor, J., Marchant, A., DelPozo-Baños, M., Farr, I., Nurmatov, U., ... & Naughton, A. (2023). An external validation of coding for childhood maltreatment in routinely collected primary and secondary care data. Scientific reports, 13(1), 8138.
Implementation
Implementation
This code lists has been externally validated against a clinical database of clinician confirmed hospital presenting maltreatment as the gold standard (John et al., in press). Our codes lists were developed from existing literature (e.g. Chandan et al., 2020; Chandan et al., 2019; Syed et al., 2022; Woodman et al., 2012), conducting our own searches for codes that may indicate maltreatment, risk or cause for concern; and finally based upon clinician judgement. This list is more comprehensive than those previously published, encompassing codes for genital mutilation and child protection codes (child protection codes in read codes only).
In keeping with previous research, we tiered our code list into those strongly indicating maltreatment (current list), and those codes that may indicate possible or suspected maltreatment or potential vulnerability (See Possible Child Maltreatment) (Chandan et al., 2019; Syed et al., 2022).
References
Chandan, J. S., Gokhale, K. M., Bradbury-Jones, C., Nirantharakumar, K., Bandyopadhyay, S., & Taylor, J. (2020). Exploration of trends in the incidence and prevalence of childhood maltreatment and domestic abuse recording in UK primary care: a retrospective cohort study using the health improvement network database. BMJ Open, 10(6), e036949.
Chandan, J. S., Thomas, T., Gokhale, K. M., Bandyopadhyay, S., Taylor, J., & Nirantharakumar, K. (2019). The burden of mental ill health associated with childhood maltreatment in the UK, using The Health Improvement Network database: a population-based retrospective cohort study. Lancet Psychiatry, 6(11), 926-934.
John, A., McGregor, J., Marchant, A., DelPozo-Baños, M., Farr, I., Nurmatov, U., ... & Naughton, A. (2023). An external validation of coding for childhood maltreatment in routinely collected primary and secondary care data. Scientific reports, 13(1), 8138.
Syed, S., Gonzalez-Izquierdo, A., Allister, J., Feder, G., Li, L., & Gilbert, R. (2022). Identifying adverse childhood experiences with electronic health records of linked mothers and children in England: a multistage development and validation study. The Lancet Digital Health.
Woodman, J., Freemantle, N., Allister, J., de Lusignan, S., Gilbert, R., & Petersen, I. (2012). Variation in recorded child maltreatment concerns in UK primary care records: a cohort study using The Health Improvement Network (THIN) database. PLoS One, 7(11), e49808.
Clinical Code List
PUBLISHED - 177 Codes
PUBLISHED - 34 Codes
PUBLISHED - 538 Codes
PUBLISHED - 19 Codes
Publication
John, A., McGregor, J., Marchant, A., DelPozo-Baños, M., Farr, I., Nurmatov, U., ... & Naughton, A. (2023). An external validation of coding for childhood maltreatment in routinely collected primary and secondary care data. Scientific reports, 13(1), 8138. https://www.nature.com/articles/s41598-023-34011-3
(DOI:10.1038/s41598-023-34011-3)
Citation Requirements
John, A., McGregor, J., Marchant, A., DelPozo-Baños, M., Farr, I., Nurmatov, U., ... & Naughton, A. (2023). An external validation of coding for childhood maltreatment in routinely collected primary and secondary care data. Scientific reports, 13(1), 8138. None
Citation Example
John, A., McGregor, J., Marchant, A., Delpozobanos, M., Farr, I., Nurmatov, U., Kemp, A., Naughton. PH1115 / 3527 - Childhood Maltreatment. Phenotype Library [Online]. 22 July 2024. Available from: http://phenotypes.healthdatagateway.org/phenotypes/PH1115/version/3527/detail/. [Accessed 08 September 2024]
API
To Export Phenotype Details:
Format API JSON site_root/api/v1/phenotypes/PH1115/version/3527/detail/?format=json R Package library(ConceptLibraryClient)
# Connect to API
client = ConceptLibraryClient::Connection$new(public=TRUE)
# Get details of phenotype
phenotype_details = client$phenotypes$get_detail(
'PH1115',
version_id=3527
)Py Package from pyconceptlibraryclient import Client
# Connect to API
client = Client(public=True)
# Get codelist of phenotype
phenotype_codelist = client.phenotypes.get_detail(
'PH1115',
version_id=3527
)To Export Phenotype Code List:
Format API JSON site_root/api/v1/phenotypes/PH1115/version/3527/export/codes/?format=json CSV site_root/phenotypes/PH1115/version/3527/export/codes/ R Package library(ConceptLibraryClient)
# Connect to API
client = ConceptLibraryClient::Connection$new(public=TRUE)
# Get codelist of phenotype
phenotype_codelist = client$phenotypes$get_codelist(
'PH1115',
version_id=3527
)Py Package from pyconceptlibraryclient import Client
# Connect to API
client = Client(public=True)
# Get codelist of phenotype
phenotype_codelist = client.phenotypes.get_codelist(
'PH1115',
version_id=3527
)Version History