Cystic Fibrosis SNOMED

PH3391 / 8411

OpenSAFELY

Jan 26, 2026

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OpenCodelists Phenotype

  1. Overview

    Codelist ID
    opensafely/cystic-fibrosis-snomed
    Version ID
    1eb02212
    Coding System
    SNOMED CT codes
    Collections
    OpenCodelistPhenotype Library
    Tags
    No data

  2. Definition

    This codelist was taken from OpenCodelists, created by OpenSAFELY. We recommend viewing this Phenotype on the OpenCodelist website to view the most recent version.

    This codelist defines cystic fibrosis and is designed for specificity. It was developed for the vitamin D study.

    © University of Oxford for the Bennett Institute for Applied Data Science 2025. This work may be copied freely for non-commercial research and study.

  3. Methodology

    Search term: cystic fibrosis All active and inactive SNOMED codes were reviewed.

    Inclusion criteria: Codes indicating a confirmed diagnosis of cystic fibrosis, including codes for any conditions due to complications of cystic fibrosis and the codes for cystic fibrosis review/ monitoring.

    Exclusion criteria for codes: Codes relating to screening, family history, being a carrier, inconclusive diagnosis (suspected CF), CF-transporter-related conditions, medications acting via CF transporer, or being seen in CF clinic (as possibly patients with inconclusive diagnosis can be seen).

  4. References

    Source Reference

    https://www.opencodelists.org/codelist/opensafely/cystic-fibrosis-snomed/1eb02212

    References

  5. Clinical Codelist

  6. API

    To Export Phenotype Details:

    FormatAPI
    JSON site_root/api/v1/phenotypes/PH3391/version/8411/detail/?format=json
    R Package

    # Download here

    library(ConceptLibraryClient)


    # Connect to API

    client = ConceptLibraryClient::Connection$new(public=TRUE)


    # Get details of Phenotype

    phenotype_details = client$phenotypes$get_detail(
     'PH3391',
     version_id=8411
    )

    Py Package

    # Download here

    from pyconceptlibraryclient import Client


    # Connect to API

    client = Client(public=True)


    # Get details of Phenotype

    phenotype_detail = client.phenotypes.get_detail(
     'PH3391',
     version_id=8411
    )

    To Export Phenotype Code List:

    FormatAPI
    JSON site_root/api/v1/phenotypes/PH3391/version/8411/export/codes/?format=json
    R Package

    # Download here

    library(ConceptLibraryClient)


    # Connect to API

    client = ConceptLibraryClient::Connection$new(public=TRUE)


    # Get codelist of Phenotype

    phenotype_codelist = client$phenotypes$get_codelist(
     'PH3391',
     version_id=8411
    )

    Py Package

    # Download here

    from pyconceptlibraryclient import Client


    # Connect to API

    client = Client(public=True)


    # Get codelist of Phenotype

    phenotype_codelist = client.phenotypes.get_codelist(
     'PH3391',
     version_id=8411
    )

  7. Version History

    Version IDNameOwnerPublish date
    Cystic Fibrosis SNOMED ieuan.scanlon2026-01-26 23:14