Phenotype Library | phenotype: CCU002

CCU002_01 Dementia

Rochelle Knight, Venexia Walker, Samantha Ip, Jennifer A Cooper, Thomas Bolton, Spencer Keene, Rachel Denholm, Ashley Akbari, Hoda Abbasizanjani, Fatemeh Torabi, Efosa Omigie, Sam Hollings, Teri-Louise North, Renin Toms, Emanuele Di Angelantonio, Spiros Denaxas, Johan H Thygesen, Christopher Tomlinson, Ben Bray, Craig J Smith, Mark Barber, George Davey Smith, Nishi Chaturvedi, Cathie Sudlow, William N Whiteley, Angela Wood, Jonathan A C Sterne

PH963

Version ID

2141

Type

Disease or Syndrome

Data Sources

GPES Data for Pandemic Planning and Research (COVID-19) , Hospital Episode Statistics Admitted Patient Care , Covid-19 Second Generation Surveillance System , Civil Registration - Deaths , Trusted Research Environments for CVD-COVID-UK / COVID-IMPACT , COVID-19 Test Results (PATD) , Welsh Longitudinal GP Dataset - Welsh Primary Care (WLGP) , Patient Episode Dataset for Wales (PEDW) , Secondary Uses Services Payment By Results

Valid event data range

01/01/1997 - 07/12/2020

Sex

♀ Female ♂ Male

Agreement Date

2021-11-24

Coding system

Read codes v2 ICD10 codes SNOMED CT codes

Collections

BHF Data Science Centre Phenotype Library

Definition

Publications

Rochelle Knight, Venexia Walker, Samantha Ip, Jennifer A Cooper, Thomas Bolton, Spencer Keene, Rachel Denholm, Ashley Akbari, Hoda Abbasizanjani, Fatemeh Torabi, Efosa Omigie, Sam Hollings, Teri-Louise North, Renin Toms, Emanuele Di Angelantonio, Spiros Denaxas, Johan H Thygesen, Christopher Tomlinson, Ben Bray, Craig J Smith, Mark Barber, George Davey Smith, Nishi Chaturvedi, Cathie Sudlow, William N Whiteley, Angela Wood, Jonathan A C Sterne, for the CVD-COVID-UK/COVID-IMPACT consortium and th

Clinical Code List

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C2773/7294 CCU002_01 Dementia - Phenotypes - England hospitalization EHR: Dementia diagnosis - ICD10 codes

Rows: 4

Code	Description	terminology	code_type
F00	Dementia in Alzheimer's disease	ICD10	1
F03	Unspecified dementia	ICD10	1
F05.1	Delirium superimposed on dementia	ICD10	1
G30	Alzheimer's disease	ICD10	1

C2774/7295 CCU002_01 Dementia - Phenotypes - England primary care EHR: Dementia diagnosis - SNOMED CT codes

Rows: 79

Code	Description	terminology	code_type
101421000119107	Dementia due to Parkinson's disease (disorder)	SNOMEDCT	1
1089521000000106	Predominantly cortical dementia (disorder)	SNOMEDCT	1
1095101000000106	Offer of dementia advance care planning review declined (situation)	SNOMEDCT	1
1095111000000108	Review of dementia advance care plan (procedure)	SNOMEDCT	1
1095121000000102	Dementia advance care plan agreed (finding)	SNOMEDCT	1
1110901000000109	Quality and Outcomes Framework dementia quality indicator-related care invitation (procedure)	SNOMEDCT	1
12348006	Presenile dementia	SNOMEDCT	1
13092008	Pick's disease	SNOMEDCT	1
135811000119107	Lewy body dementia with behavioral disturbance (disorder)	SNOMEDCT	1
142001000119106	Depressed mood in Alzheimer's disease (disorder)	SNOMEDCT	1
15662003	Senile dementia	SNOMEDCT	1
191449005	Uncomplicated senile dementia	SNOMEDCT	1
191451009	Uncomplicated presenile dementia	SNOMEDCT	1
191452002	Presenile dementia with delirium	SNOMEDCT	1
191454001	Presenile dementia with paranoia	SNOMEDCT	1
191455000	Presenile dementia with depression	SNOMEDCT	1
191457008	Senile dementia with depressive or paranoid features	SNOMEDCT	1
191458003	Senile dementia with paranoia	SNOMEDCT	1
191459006	Senile dementia with depression	SNOMEDCT	1
191461002	Senile dementia with delirium	SNOMEDCT	1
191493005	Drug-induced dementia (disorder)	SNOMEDCT	1
191519005	Dementia in conditions EC	SNOMEDCT	1
20484008	Prion disease	SNOMEDCT	1
21921000119103	Dementia due to Pick's disease	SNOMEDCT	1
22381000119105	Primary degenerative dementia	SNOMEDCT	1
230265002	Familial Alzheimer's disease of early onset	SNOMEDCT	1
230266001	Non-familial Alzheimer's disease of early onset	SNOMEDCT	1
230267005	Familial Alzheimer's disease of late onset	SNOMEDCT	1
230268000	Non-familial Alzheimer's disease of late onset	SNOMEDCT	1
230269008	Focal Alzheimer's disease	SNOMEDCT	1
230270009	Frontotemporal dementia (disorder)	SNOMEDCT	1
230271008	Pick's disease with Pick bodies (disorder)	SNOMEDCT	1
230273006	Frontotemporal degeneration (disorder)	SNOMEDCT	1
230274000	Frontal lobe degeneration with motor neurone disease (disorder)	SNOMEDCT	1
230280008	Progressive aphasia in Alzheimer's disease	SNOMEDCT	1
230282000	Post-traumatic dementia (disorder)	SNOMEDCT	1
230283005	Punch drunk syndrome (disorder)	SNOMEDCT	1
230284004	Spongiform encephalopathy	SNOMEDCT	1
230287006	Mixed cortical and subcortical vascular dementia	SNOMEDCT	1
230288001	Semantic dementia (disorder)	SNOMEDCT	1
230289009	Patchy dementia (disorder)	SNOMEDCT	1
26929004	Alzheimer's disease	SNOMEDCT	1
278855005	Frontal lobe degeneration (disorder)	SNOMEDCT	1
278857002	Dementia of frontal lobe type (disorder)	SNOMEDCT	1
279982005	Cerebral degeneration presenting primarily with dementia	SNOMEDCT	1
281004	Dementia associated with alcoholism	SNOMEDCT	1
304603007	New variant of Creutzfeldt-Jakob disease	SNOMEDCT	1
312991009	Senile dementia of the Lewy body type	SNOMEDCT	1
416780008	Primary degenerative dementia of the Alzheimer type, presenile onset (disorder)	SNOMEDCT	1
416975007	Primary degenerative dementia of the Alzheimer type, senile onset (disorder)	SNOMEDCT	1
419261000000107	[X]Dementia in Alzheimer's dis, atypical or mixed type (disorder)	SNOMEDCT	1
425390006	Dementia associated with Parkinson's Disease (disorder)	SNOMEDCT	1
429458009	Dementia due to Creutzfeldt Jakob disease (disorder)	SNOMEDCT	1
442344002	Dementia due to Huntington chorea	SNOMEDCT	1
45864009	Senile degeneration of brain (disorder)	SNOMEDCT	1
52448006	Dementia	SNOMEDCT	1
62239001	Parkinson-dementia complex of Guam (disorder)	SNOMEDCT	1
66108005	Primary degenerative dementia of the Alzheimer type, senile onset, uncomplicated	SNOMEDCT	1
67155006	Gerstmann-Straussler-Scheinker syndrome	SNOMEDCT	1
698626001	Dementia associated with multiple sclerosis (disorder)	SNOMEDCT	1
711441000000100	Dementia monitoring invitation (procedure)	SNOMEDCT	1
713060000	Sporadic Creutzfeldt-Jakob disease (disorder)	SNOMEDCT	1
715821000000107	Dementia monitoring first letter (procedure)	SNOMEDCT	1
716221000000104	Dementia monitoring verbal invitation (procedure)	SNOMEDCT	1
716671000000102	Dementia monitoring third letter (procedure)	SNOMEDCT	1
716991000000108	Dementia monitoring telephone invitation (procedure)	SNOMEDCT	1
717471000000101	Dementia monitoring second letter (procedure)	SNOMEDCT	1
723390000	Rapidly progressive dementia (disorder)	SNOMEDCT	1
792004	Jakob-Creutzfeldt disease	SNOMEDCT	1
79341000119107	Mixed dementia (disorder)	SNOMEDCT	1
80098002	Diffuse Lewy body disease	SNOMEDCT	1
83157008	Fatal familial insomnia	SNOMEDCT	1
9345005	Dialysis dementia (disorder)	SNOMEDCT	1
938551000000108	Dementia medication review (procedure)	SNOMEDCT	1
956841000000106	Dementia care plan agreed (finding)	SNOMEDCT	1
956861000000107	Dementia care plan reviewed (situation)	SNOMEDCT	1
956881000000103	Dementia care plan declined (situation)	SNOMEDCT	1
956901000000100	Dementia care plan review declined (situation)	SNOMEDCT	1
959461000000102	Dementia advance care plan review declined (situation)	SNOMEDCT	1

C2775/7296 CCU002_01 Dementia - Phenotypes - England hospitalization EHR: Vascular dementia diagnosis - ICD10 codes

Rows: 1

Code	Description	terminology	code_type
F01	Vascular dementia	ICD10	1

C2776/7297 CCU002_01 Dementia - Phenotypes - England primary care EHR: Vascular dementia diagnosis - SNOMED CT codes

Rows: 12

Code	Description	terminology	code_type
10349009	Multi-infarct dementia with delirium (disorder)	SNOMEDCT	1
16276361000119109	Vascular dementia without behavioral disturbance (disorder)	SNOMEDCT	1
191463004	Uncomplicated arteriosclerotic dementia	SNOMEDCT	1
191464005	Arteriosclerotic dementia with delirium	SNOMEDCT	1
191465006	Arteriosclerotic dementia with paranoia	SNOMEDCT	1
191466007	Arteriosclerotic dementia with depression	SNOMEDCT	1
230285003	Vascular dementia of acute onset	SNOMEDCT	1
230286002	Subcortical vascular dementia	SNOMEDCT	1
288631000119104	Vascular dementia with behavioral disturbance (disorder)	SNOMEDCT	1
429998004	Vascular dementia (disorder)	SNOMEDCT	1
56267009	Multi-infarct dementia	SNOMEDCT	1
723123001	Ischemic vascular dementia (disorder)	SNOMEDCT	1

C2777/7298 CCU002_01 Dementia - Phenotypes - Wales primary care EHR: Dementia diagnosis - Read codes v2

Rows: 54

Code	Description	Category	Phenotype
1461	H/O: dementia	History of Dementia	DEMENTIA
66h..	Dementia monitoring	History of Dementia	DEMENTIA
6AB..	Dementia annual review	History of Dementia	DEMENTIA
8CMZ.	Dementia care plan	History of Dementia	DEMENTIA
9Ou..	Dementia monitoring administration	History of Dementia	DEMENTIA
9Ou1.	Dementia monitoring first letter	History of Dementia	DEMENTIA
9Ou2.	Dementia monitoring second letter	History of Dementia	DEMENTIA
9Ou3.	Dementia monitoring third letter	History of Dementia	DEMENTIA
9Ou4.	Dementia monitoring verbal invite	History of Dementia	DEMENTIA
9Ou5.	Dementia monitoring telephone invite	History of Dementia	DEMENTIA
9hD..	Exception reporting: dementia quality indicators	History of Dementia	DEMENTIA
9hD0.	Excepted from dementia quality indicators: Patient unsuitabl	History of Dementia	DEMENTIA
9hD1.	Excepted from dementia quality indicators: Informed dissent	History of Dementia	DEMENTIA
E00..	Senile and presenile organic psychotic conditions	Diagnosis of Dementia	DEMENTIA
E000.	Uncomplicated senile dementia	Diagnosis of Dementia	DEMENTIA
E001.	Presenile dementia	Diagnosis of Dementia	DEMENTIA
E0010	Uncomplicated presenile dementia	Diagnosis of Dementia	DEMENTIA
E0011	Presenile dementia with delirium	Diagnosis of Dementia	DEMENTIA
E0012	Presenile dementia with paranoia	Diagnosis of Dementia	DEMENTIA
E0013	Presenile dementia with depression	Diagnosis of Dementia	DEMENTIA
E001z	Presenile dementia NOS	Diagnosis of Dementia	DEMENTIA
E002.	Senile dementia with depressive or paranoid features	Diagnosis of Dementia	DEMENTIA
E0020	Senile dementia with paranoia	Diagnosis of Dementia	DEMENTIA
E0021	Senile dementia with depression	Diagnosis of Dementia	DEMENTIA
E002z	Senile dementia with depressive or paranoid features NOS	Diagnosis of Dementia	DEMENTIA
E003.	Senile dementia with delirium	Diagnosis of Dementia	DEMENTIA
E004.	Arteriosclerotic dementia	Diagnosis of Dementia	DEMENTIA
E0040	Uncomplicated arteriosclerotic dementia	Diagnosis of Dementia	DEMENTIA
E0041	Arteriosclerotic dementia with delirium	Diagnosis of Dementia	DEMENTIA
E0042	Arteriosclerotic dementia with paranoia	Diagnosis of Dementia	DEMENTIA
E0043	Arteriosclerotic dementia with depression	Diagnosis of Dementia	DEMENTIA
E004z	Arteriosclerotic dementia NOS	Diagnosis of Dementia	DEMENTIA
E00y.	Other senile and presenile organic psychoses	Diagnosis of Dementia	DEMENTIA
E00z.	Senile or presenile psychoses NOS	Diagnosis of Dementia	DEMENTIA
E041.	Dementia in conditions EC	Diagnosis of Dementia	DEMENTIA
Eu00.	[X]Dementia in Alzheimer's disease	Diagnosis of Dementia	DEMENTIA
Eu000	[X]Dementia in Alzheimer's disease with early onset	Diagnosis of Dementia	DEMENTIA
Eu001	[X]Dementia in Alzheimer's disease with late onset	Diagnosis of Dementia	DEMENTIA
Eu002	[X]Dementia in Alzheimer's dis, atypical or mixed type	Diagnosis of Dementia	DEMENTIA
Eu00z	[X]Dementia in Alzheimer's disease, unspecified	Diagnosis of Dementia	DEMENTIA
Eu01.	[X]Vascular dementia	Diagnosis of Dementia	DEMENTIA
Eu010	[X]Vascular dementia of acute onset	Diagnosis of Dementia	DEMENTIA
Eu011	[X]Multi-infarct dementia	Diagnosis of Dementia	DEMENTIA
Eu012	[X]Subcortical vascular dementia	Diagnosis of Dementia	DEMENTIA
Eu013	[X]Mixed cortical and subcortical vascular dementia	Diagnosis of Dementia	DEMENTIA
Eu01y	[X]Other vascular dementia	Diagnosis of Dementia	DEMENTIA
Eu01z	[X]Vascular dementia, unspecified	Diagnosis of Dementia	DEMENTIA
Eu02z	[X] Unspecified dementia	Diagnosis of Dementia	DEMENTIA
Eu041	[X]Delirium superimposed on dementia	History of Dementia	DEMENTIA
F110.	Alzheimer's disease	Diagnosis of Dementia	DEMENTIA
F1100	Alzheimer's disease with early onset	Diagnosis of Dementia	DEMENTIA
F1101	Alzheimer's disease with late onset	Diagnosis of Dementia	DEMENTIA
Fyu30	[X]Other Alzheimer's disease	Diagnosis of Dementia	DEMENTIA
ZS7C5	Language disorder of dementia	History of Dementia	DEMENTIA

API

To Export Phenotype Details:

Format	API
XML	site_root/api/v1/public/phenotypes/PH963/version/2141/detail/?format=xml
JSON	site_root/api/v1/public/phenotypes/PH963/version/2141/detail/?format=json
R Package	`# Download here library(ConceptLibraryClient) # Connect to API client = connect_to_API(public=TRUE) # Get details of phenotype details = get_phenotype_detail_by_version('PH963', '2141', api_client=client)`

To Export Phenotype Code List:

Format	API
XML	site_root/api/v1/public/phenotypes/PH963/version/2141/export/codes/?format=xml
JSON	site_root/api/v1/public/phenotypes/PH963/version/2141/export/codes/?format=json
CSV	site_root/phenotypes/PH963/version/2141/export/codes/
R Package	`# Download here library(ConceptLibraryClient) # Connect to API client = connect_to_API(public=TRUE) # Get codelists of phenotype codelists = get_phenotype_code_list('PH963', '2141', api_client=client)`

Version History

Version ID	Name	Owner	Publish date
2141	CCU002_01 Dementia	ieuan.scanlon	2022-05-17	currently shown
2005	CCU002_01 Dementia	ieuan.scanlon	2022-05-09